A Need for Guidelines: Delivery of a Fetal Anomaly Diagnosis Shandeigh N. Berry, MSN, RN, CNOR, PhD Student Karen Colorafi, PhD, MBA, RN, Assistant Professor College of Nursing, Washington State University, Spokane, WA Background Congenital anomalies, such as anencephaly, are: Leading cause of infant death in the United States Responsible for nearly 20% of infant mortality Current practice: nearly 100% of providers recommend termination of pregnancy. Nursing literature suggests as many as 40% of parents receiving the diagnosis of anencephaly wish to carry the pregnancy to term. Available options: Donation Whole Body Organ Tissue Perinatal Palliative Care Method Literature review of databases PubMed CINAHL PsycINFO NICE Evidence Inclusion Criteria English Language Published in the last ten years Search Results Titles reviewed: 185 Abstracts reviewed: 28 Articles reviewed: 20