UCEDD Outcome Measures Restarting the Discussion

Overview of Session ADD perspective Historical perspective Federal outlook Facilitated Discussion

Purpose of Discussion Expectations with regard to accountability is not going away Timing is right Implementation of data collection system Expiration of OMB approval Westat Independent Evaluation

Purpose of Discussion Promote a dialogue and thinking about how to evaluate UCEDDs From a national perspective At the individual UCEDD level

Goals of Discussion Inform a method for evaluating UCEDD outcomes at the national and individual UCEDD levels Gather information that will help define outcomes for the UCEDD network Stimulate individual UCEDDs to think about their own evaluation Have outcome measures included in the Annual Report

Considerations Westat work is on-going and should inform our discussions Needs to be feasible – we do not want to create a burden for UCEDDs Needs to be relevant Need to look at work done in the past (i.e., “Suggested Approach” document) – think about intermediate outcomes or streamlined reporting Doesn’t mean that other areas aren’t important

Considerations Based on consensus Need to build upon current data collection systems Need to find a way to bring multiple data systems and guiding documents together

GPRA Measure Annual Measure8D. Increase the percent of University Centers of Excellence in Developmental Disabilities (UCEDD) trainees who demonstrate leadership in the developmental disabilities field at 1, 5, and 10 years after completion of UCEDD training. (outcome) Expected progress: 1% increase over prior year Baseline Sep-07 Cross Reference: This performance measure supports HHS Strategic Objective 6.3, and was developed as a result of the PART review. This measure also supports the Secretary’s 5,000 Day Horizon, in which, “… persons with disabilities are cared for with dignity and respect.”

HHS Strategic Plan GOAL 6: Improve the economic and social well-being of individuals, families, and communities, especially those most in need Objective 6.1: Increase the proportion of low-income individuals and families, including those receiving welfare, who improve their economic condition Objective 6.2: Increase the proportion of older Americans who stay active and healthy Objective 6.3: Increase the independence and quality of life of persons with disabilities, including those with long-term care needs Objective 6.4: Improve the economic and social development of distressed communities Objective 6.5: Expand community and faith-based partnerships

Other items for alignment ADD Logic Model MTARS NIRS Annual Report Independent Evaluation

Next steps Seeking volunteers for a workgroup who will further discussions about appropriate outcome measures for the UCEDDs Include outcome measures in the OMB package – timeline TBD