Annual Fall Meeting November 13, 2016 6:30pm Welcome J. Kirklin/M. Everitt 6:40pm Steering Committee Report M. Everitt 6:50pm DCC Update J. Kirklin 7:05pm Web Based Data Entry D. Naftel 7:20pm Database Committee Report M. Richmond 7:35pm Foundation Update C. Collum/B. Wilk/R. Gajarski 7:50pm Risk Factor Model K. Schumacher 8:05pm Heart Failure Simulation B. Feingold 8:10pm iPHFR R. Gajarski 8:15pm Break 8:30pm Pedimacs Report B. Blume 8:40pm Scientific Committee Report D. Hsu 8:50pm Scientific Committee Sponsored Workshops 9:35pm New Business 9:45pm Adjourn

Committee Members 2016-2017 Database Committee Marc Richmond, MD Chair Nancy McDonald, NP Non Physician Rep. James Kirklin, MD UAB Representative Jacqueline Lamour, MD Member at Large Joshua Sparks, MD Member at Large Philip Thrush, MD Member at Large Katie Simpson, MD Member at Large

WBDE Version 1.1.0 went live in August Save for later button moved Dashboard defaults to “active” patients Automatic generation of forms Demographics Annual follow-up (forms 8 and 12) Clarification on justification for listing/MCS

Data Mapping Infection Organisms

Data Mapping Infection Organisms Current: Free Text Box Coming Soon: Check all that apply Mapping of over 450 organisms entered 1993-present

Medications at Annual Follow Up Data Mapping Medications at Annual Follow Up 2010 Data Collection Form 2015 Data Collection Form

Medications at Annual Follow Up Data Mapping Medications at Annual Follow Up Current: Free Text Box Coming Soon: Check all that apply Mapping of over 2,500 medications entered 1993-present

Other, specify There are several dozen places in the database where “other, specify” is an available option. The Database Committee is beginning to review what has been entered for these “specify” fields for data cleaning. Once all fields have been reviewed, the Committee will have a quarterly review of all data entered for data cleaning and to determine if additional answer choices need to be added to questions.

Ongoing Adjustments as issues arise Recurrent questions Standard units of measurement Recurrent questions Many questions arise because various centers report results in different ways ABO titers HLA/DSA Catalogue questions as a resource

Upcoming Coordinators meeting Q&A session ISHLT April 2017