Long-term follow-up of cystic fibrosis newborn screening: Psychosocial functioning of adolescents and young adults Audrey Tluczek, Anita Laxova, Adam.

Slides:

Advertisements

Similar presentations

Long-term non-invasive ventilation in cystic fibrosis — Experience over two decades William G. Flight, Jonathan Shaw, Susan Johnson, A. Kevin Webb, Andrew.

Advertisements

Comparing age of cystic fibrosis diagnosis and treatment initiation after newborn screening with two common strategies Don B. Sanders, Huichuan J. Lai,

Cheryl Cameron, Mark W. Lodes, William M. Gershan

Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery J. Abbott, J.S. Elborn, A.M. Georgiopoulos,

Treatment compliance in children and adults with Cystic Fibrosis

P. Whitaker, N. Shaw, J. Gooi, C. Etherington, S. Conway, D. Peckham

R. Roberts, L. Speight, J. Lee, L. George, R. I. Ketchell, D. Lau, J

How does heart rate recovery after sub-maximal exercise correlate with maximal exercise testing in children with CF? Sarah P. Cohen, David M. Orenstein

Single high-dose oral vitamin D3 (stoss) therapy — A solution to vitamin D deficiency in children with cystic fibrosis? Darren Shepherd, Yvonne Belessis,

Megan R. Nelson, Craig R. Adamski, Audrey Tluczek

Urinary incontinence in 9��16��year olds with cystic fibrosis compared to other respiratory conditions and a normal group W.J. Browne, C.J. Wood, M.

Measures of body habitus are associated with lung function in adults with cystic fibrosis: A population-based study Doug L. Forrester, Alan J. Knox,

Microbiological yield from induced sputum compared to oropharyngeal swab in young children with cystic fibrosis Marco Zampoli, Komala Pillay, Henri Carrara,

Laura Viviani, Baroukh M. Assael, Eitan Kerem

Cirrhosis and other liver disease in cystic fibrosis

Controlled clinical trials in cystic fibrosis — are we doing better?

Adherence to nebulised therapies in adolescents with cystic fibrosis is best on week- days during school term-time Rosemary Ball, Kevin W. Southern, Pamela.

Long-term azitromycin treatment of cystic fibrosis patients with chronic Pseudomonas aeruginosa infection; an observational cohort study Christine Rønne.

Anju Anand, Elizabeth Tullis, Anne Stephenson, Preyanka Abhyankar

D. Stevens, P.J. Oades, N. Armstrong, C.A. Williams

Claire J. Tipping, Rebecca L. Scholes, Narelle S. Cox

Cystic fibrosis mortality trend in Italy from 1970 to 2011

Influence of digital clubbing on oxygen saturation measurements by pulse-oximetry in cystic fibrosis patients Filip Van Ginderdeuren, Karlien Van Cauwelaert,

Claire Keating, Armeen D

Prenatal diagnosis for CF using High Resolution Melting Analysis and simultaneous haplotype analysis through QF-PCR Myrto Poulou, Aspasia Destouni, Georgia.

Nutritional status is associated with health-related quality of life in children with cystic fibrosis aged 9–19years Suzanne M. Shoff, Audrey Tluczek,

Amyloidosis in cystic fibrosis: A case series

Spontaneous coronary artery dissection associated with coughing

Ghrelin and leptin levels in young adults with cystic fibrosis: Relationship with body fat Charilaos Stylianou, Assimina Galli-Tsinopoulou, George Koliakos,

A.H. Gifford Journal of Cystic Fibrosis

Inhalation solutions — Which ones may be mixed

Antonia V. Bennett, Donald L. Patrick, James F. Lymp, Todd C

Cystic fibrosis mutations and genotype–pulmonary phenotype analysis

Characterisation of mutations and genotype–phenotype correlation in cystic fibrosis: Experience from India Shivaram S. Shastri, Madhulika Kabra, Sushil.

E. Tschiedel, H. Grasemann, F. Ratjen Journal of Cystic Fibrosis

Depression and anxiety in adolescents and adults with cystic fibrosis in the UK: A cross- sectional study Alistair J.A. Duff, Janice Abbott, Carolyn Cowperthwaite,

Sally H. Pattison, Geraint B. Rogers, Martin Crockard, J

Prevalence and risk factors for recovery of filamentous fungi in individuals with cystic fibrosis Christopher R. Sudfeld, Elliott C. Dasenbrook, William.

Cytokine gene polymorphisms and severity of CF lung disease

Pulmonary outcome differences in U. S

Nasal polyposis in lung transplant recipients with cystic fibrosis

Narelle S. Cox, Jennifer Follett, Karen O. McKay

Novel concepts in evaluating antimicrobial therapy for bacterial lung infections in patients with cystic fibrosis Geraint B. Rogers, Lucas R. Hoffman,

Nutritional decline in cystic fibrosis related diabetes: The effect of intensive nutritional intervention H. White, K. Pollard, C. Etherington, I. Clifton,

Gender differences in treatment adherence among youth with cystic fibrosis: Development of a new questionnaire Joän M. Patterson, Melanie Wall, Jerica.

Segregation of children with CF diagnosed via newborn screening and acquisition of Pseudomonas aeruginosa Karen O. McKay, Peter J. Cooper, Peter P. van.

Disease disclosure in individuals with cystic fibrosis: Association with psychosocial and health outcomes Adrienne P. Borschuk, Robin S. Everhart, Michelle.

Higher risk of hospitalization among females with cystic fibrosis

Trends in pathogens colonising the respiratory tract of adult patients with cystic fibrosis, 1985–2005 F.A. Millar, N.J. Simmonds, M.E. Hodson Journal.

A new method of sweat testing: the CF Quantum®sweat test

Comparing age of cystic fibrosis diagnosis and treatment initiation after newborn screening with two common strategies Don B. Sanders, Huichuan J. Lai,

H. White, A.M. Morton, S.P. Conway, D.G. Peckham

J.E. Spahr, R.B. Love, M. Francois, K. Radford, K.C. Meyer

Michael W. Konstan, David J. Pasta, Jeffrey S. Wagener, Donald R

D.F. Waterhouse, A.M. McLaughlin, C.G. Gallagher

The role of respiratory viruses in adult patients with cystic fibrosis receiving intravenous antibiotics for a pulmonary exacerbation C. Etherington,

CFTR modulators and pregnancy: Our work has only just begun

‘Peeling paint’ dermatitis as a presenting sign of cystic fibrosis

L. Nshimyumukiza, A. Bois, P. Daigneault, L. Lands, A. -M. Laberge, D

Beta-lactam allergy in adults with cystic fibrosis

Cheryl Cameron, Mark W. Lodes, William M. Gershan

A survey of newborn screening for cystic fibrosis in Europe

Lutz Goldbeck, Sven Zerrer, Tim G. Schmitz Journal of Cystic Fibrosis

Khin M. Gyi, Margaret E. Hodson, Magdi Y. Yacoub

David Adeboyeku, Sandra Scott, Margaret E. Hodson

Increasing resistance of the Liverpool Epidemic Strain (LES) of Pseudomonas aeruginosa (Psa) to antibiotics in cystic fibrosis (CF)—A cause for concern?

Elisabeth P. Dellon, Margaret W. Leigh, James R. Yankaskas, Terry L

Anne K. Swisher, Kathryn Moffett, Linda Baer

Improved early diagnosis of Pseudomonas aeruginosa by real-time PCR to prevent chronic colonisation in a paediatric cystic fibrosis population Elaine.

Respiratory physicians and clinic coordinators' attitudes to population-based cystic fibrosis carrier screening Fiona Cunningham, Sharon Lewis, Lisette.

Presentation transcript:

Long-term follow-up of cystic fibrosis newborn screening: Psychosocial functioning of adolescents and young adults Audrey Tluczek, Anita Laxova, Adam Grieve, Anne Heun, Roger L. Brown, Michael J. Rock, William M. Gershan, Philip M. Farrell Journal of Cystic Fibrosis Volume 13, Issue 2, Pages 227-234 (March 2014) DOI: 10.1016/j.jcf.2013.10.001 Copyright © 2013 European Cystic Fibrosis Society. Terms and Conditions

Fig. 1 Heuristic model of factors. Associated with Youth Psychosocial Functioning. Child psychological functioning includes Personal Adjustment, Internalizing Problems, Emotional Symptoms, Inattention–Hyperactivity, and School Problems. CF-NBS=cystic fibrosis diagnosis made through newborn screening. CF-SP=cystic fibrosis diagnosis made through standard practice at time. H=healthy comparison group without cystic fibrosis or other chronic conditions. Journal of Cystic Fibrosis 2014 13, 227-234DOI: (10.1016/j.jcf.2013.10.001) Copyright © 2013 European Cystic Fibrosis Society. Terms and Conditions