Henry Ford’s Patient and Family Advisor Approach After our training, we were ready for a kick-off meeting with our advisors! Vision Board Exercise Engaged members in telling us what is most important to them Strategic Planning for the next 6 months Identified 5 priorities for Council focus We evaluated their perspectives – what they liked/what they didn’t about the meeting so we could improve together After our phenomenal training on Oct 31, we felt more than energized to get started with our Council -Before our kick off meeting, I want to summarize the work that is done behind the scenes a little bit. -Go through nomination process

Head & Neck Cancer Patient Advisory Council Vision Board “I would like to share my personal experiences, in order to make things better for others.” “Being a Patient Advisor means making the next patient’s experience better than the last- always improving.” “My experience with the ENT clinic was very positive three years ago and I am looking forward to hearing other people’s stories and helping with my input.” “Looking to improve communication between Treatment Teams.” “Loving to help and being a good listener.” “I want to work with others to generate ideas for better care- things we can’t do alone.” “I want to make healthcare easier for others, less threatening, less frustrating and less anxiety.” “Improve services to patients, share my positive experiences as an ENT patient, help others (indirectly) through a difficult time, give my time as a “thank you” to HFHS, provide feedback regarding existing services/programs, and be a part of an exciting process.”   “Ensure challenge- free patient experience and help simplify patient negotiations.” “To give something back to the Team.” I like to talk to people as a retired teacher, I miss being in a group discussion and engaging in problem solving within the group. “Help others in the future have a better experience.” “Improve the patient care experience, patient outcomes and quality of life for future patients. All cancer patients are not just head and neck cancer patients.” “Being able to provide information to others as to what to expect in laymen terms.” “To take HFHS to the next level of care, assist other patients who face the same challenges, and to use skills to enhance ENT care.” -This is the vision board we created after our first meeting. It is hung at every meeting as a constant reminder of our purpose and focus. -Provided paper copies of this board to everyone so they could take it home and share -Add to this with every new member What Does being a Patient Advisor Mean to You?

How the Advisors Ranked the Topics to Work on Together! The top three picks! This slide has the top 3 of the 5 priorities that were identified in the kick-off meeting

12/8/14 Advisory Kick-Off Meeting: Evaluation Results

12/8/14 Advisory Kick-Off Meeting: Evaluation Results

Other Accomplishments Council has met 3 times (4th meeting on March 25th) 1 Patient Advisor participates in agenda planning for upcoming meetings Created and signed Council Charter Commenced work on Resource Folder for New Patients Assessed what needed to be kept, removed or improved Created a list of documents that needed to be created and added to folder This will be focus of next few meetings

Obstacles/Challenges Faced Action taken to overcome obstacles Keeping Patients Engaged Follow-up Letters -Summary of previous meeting -Updates on progress made - Agenda, logistics-next meeting Check-in phone calls “Homework” Attendance Follow-up phone calls Confirmation phone calls Clinic staff reminding Council members of meeting Keeping meetings and dynamic Inviting members to participate in agenda planning Evaluating various small and large group activities to assess effectiveness Weather Limitations/Living far away from meeting locations Telecommuting Conference calling (?)

Henry Ford– What We Learned Preparing and organizing for the meetings is key to get the most out of them Continuously recruiting patients is helpful Evaluate your progress and track your success. Use data to drive improvement Show patients and advisors how their feedback was used to improve care Keep at it!

What’s Next March 25th Meeting: Discuss homework Post treatment clinic Presentation of impact of Council throughout HFHS Creating metrics for measuring success General check-in for how we are doing as Council Staff and Facilitators

THANK YOU!!!!! Voice of the Patient Collaborative Dr. Stephen Chang and all Clinic Staff ENT Clinic Patient Advisory Council Patient Engaged Research Center (PERC) Patient Engagement Core (PERC)