Fostering Diverse Partnerships for Successful Care Coordination Beyond Practice: Fostering Diverse Partnerships for Successful Care Coordination Put the see-saw on here – it’s our logo – think it best represents the challenges that everyone involved w/ child w/ special needs experiences – the need for balance in the midst of chaos. Brad Thompson, MA, LPC Co-Founder, The HALI Project bthompson@southwest.org www.thehaliproject.org 806-352-5647 or 806-676-1773

The HALI Project Model The original question – “How can we take the “nonmedical pieces” of family-centered care off of the provider’s plate?” What are those things? Local services – both traditional and non-traditional School challenges Emotional challenges – “This is not the way it’s supposed to be” “You’re not alone” “My spouse/parents/in-laws think he just needs a spanking” How do we do that? Think of the amount of time you’ve spent recently engaged in conversations about these areas – Valuable discussions, but probably outside your “wheelhouse” Practically speaking – usally not billable Parents in these systems themselves have better idea of how to bring together the needs of families in all areas – so that plans are comprehensive across all arenas of life, not just comprehensive in the medical arena

CHALLENGE GOALS ACTIVITIES OUTPUT MEASURES OUTCOME MEASURES SHORT-TERM Emotional stress associated with caring for CYSHCN Access to high quality, coordinated care Time spent accessing care & services High costs associated with CYSHCN – in all areas of life Preserve, strengthen, and support family members as they care for loved one Provide on-site access to resources, allowing providers to operate more efficiently. Provide empathy for caregiver’s stress. Encourage hope Create savings to the system. Clinic staff identifies potential Parent Partners Train Parent Partners using Hali Project Training curriculum. Provide ongoing relational support between clinic visits. Identify family stressors. Provide caregivers access to services and information. Parent Partner training and ongoing support from Program Director. Improved patient/family engagement experience. More comprehensive, onsite resources for providers Reduced wait time Improved provider satisfaction. SHORT-TERM Reduced family stress levels. Improved treatment plan compliance. Reduced time spent during clinic visits. Decline in the number of emergency room visits. Improved connections to local support groups. OBJECTIVE LONG-TERM Help providers identify potential parent partners who can provide the non-medical aspects of the medical home model. Improved quality of care Better patient/family outcomes. Reduced healthcare costs. Higher quality comprehensive, family centered care. Improved satisfaction for patients, families, and providers.

Benefits of the Parent Partner Model We reduce the cost of “the listening ear.” Unbillable hours By having these conversations, Parent Partners pay for themselves. Moms will tell another mom they trust things they will never share with anyone else. Parents with experience in the world of special needs know who to talk to, not just what number to call. This saves everyone’s time Parent Partners are far more available between office visits. Encourages better follow up and follow through. Can produce better insight into a family’s life. 2. Mom in Omaha best example

The HALI Project Parent Partner Model Benefit to Families Gives them someone who’s “been there.” Gives them someone they can talk to away from the doctor’s office. Gives them support away from the office in other complicated areas of life. Gives them not only the “where” but the “who.” Everywhere I go, hear providers talking about the importance of this, and I’m thankful for your emphasis on us. These building relationships often stretch beyond the medical arena. But when the listening ear is yours, can be very costly. And it puts you in places weren’t trained for.

The HALI Project Parent Partner Model Benefits to Providers: Reduces the cost of the “listening ear.” Allows you to spend more time “at the top of your license.” What are the things you do regularly that are time consuming and not reimbursable? How many times do you get caught having conversation that goes outside of your training? As primary care seems to get de-valued in our system – especially when comes to reimbursement – important that you are able to do the things that can be paid for. Not diminishing importance of relationship – it’s huge. But relationship doesn’t mean you have to be an expert in every area of SN family’s life. 3. How much time each week do these conversations cost you?

Looking Forward – Lasting Relationships We are able to encourage caregivers to look for the “best possible life.” We can teach communication in spite of sometimes overwhelming emotions. We can support them through the many transitions in life, including the medical. We can encourage the marathon pace, not the sprint, to avoid burnout. Parent Partners can encourage & build this relationship that can exist outside of the practice and kids’ appointments to provide support in other areas of life that can support resilience for every area of life.