Portrayal of Disability: Disability as Inspiration Southwest ADA Center Regional Affiliate – Arkansas • University of Arkansas – Partners for Inclusive Communities

Have you watched Speechless? Is anyone familiar with the television series, Speechless? For those who are not familiar with it, Speechless is a television series on ABC about a family with 3 kids–JJ, Dylan, and Ray. JJ has cerebral palsy and uses a laser pointer and communication board to communicate. A real win for disabled actors is that JJ is played by an actor who does indeed have cerebral palsy. His name is Micah Fowler. As an aside, this has often not been the case. In most cases, disabled characters are played by nondisabled actors. One of many examples of this is the actor hired to play Artie in the television series, Glee.) In one episode of Speechless, they address this idea of inspiration porn. A classmate that JJ barely knows writes a speech about how JJ inspires him. He uses the theme to tug at the heartstrings of his instructors and classmates in hopes of winning a contest. In a conversation about what this classmate is doing, the younger brother of JJ, Ray DiMeo defines inspiration porn this way: Southwest ADA Center Regional Affiliate – Arkansas • University of Arkansas – Partners for Inclusive Communities

Inspiration Porn “It’s a portrayal of people with disabilities as one-dimensional saints who only exist to warm the hearts and open the minds of able- bodied people.” “It’s a portrayal of people with disabilities as one-dimensional saints who only exist to warm the hearts and open the minds of able-bodied people.” Just a side note that there are problems with the phrase “able-bodied” but since it is a quote, I’ve left it as is. I personally prefer the term “nondisabled” as do many disability activists. Southwest ADA Center Regional Affiliate – Arkansas • University of Arkansas – Partners for Inclusive Communities

Stella Young - TedTalk So that we can get a better understanding of how this way of viewing disability is problematic, I’d like to share this brief 10-minute TedTalk by Stella Young. Stella Young was an Australian comedian, journalist, teacher and disability activist who was passionate about women’s issues and and issues that impact youth with disabilities. She passed away at the age of 32 in 2014, not long after recording this talk. Her TedTalk is one of my favorites and is highly popular among disability activists. As we watch this video, pay attention to the themes related to how people see her. View video Pose questions for discussion. Choose questions appropriate for your audience. What were some of the ways that Stella said that she and other disabled people are portrayed? What specific examples of people seeing her as inspirational do you recall? What are some examples that you have seen in the media of people with disabilities being portrayed as inspirational? In the community? Here on our campus? Can you think of viral videos that might be categorized as “inspiration porn”? Do you think Stella’s TedTalk challenges dominant thinking about disability? If so, how? Are there situations where disabled people really are inspiring? If “People with disabilities are inspiring” is the dominant narrative in society, what are some counter-narratives? After hearing Stella’s video, do you think inspirational memes and viral videos are helpful or hurtful? In what ways? Can you think of ways to counter these portrayals of disability? What are some responses you might give someone who shares one of these memes with you on social media and states that they think it’s wonderful? We’ve discussed the tendency of people to think it is inspiring for people with disabilities just to do the things everyone else takes for granted. Here are a few other ways this tendency to see disability as something to inspire us plays out. Southwest ADA Center Regional Affiliate – Arkansas • University of Arkansas – Partners for Inclusive Communities

Other examples of inspiration porn The Amazing Parent The Heroic Professional The Benevolent Classmates The amazing parent: A parent is represented as a hero because they are being a parent to a child with Down’s syndrome. The heroic professional: A professional is honored for “working tirelessly” for and with people with disabilities. This kind of language is very common when honoring someone who works in the profession of disability services. In fact, often when I share with others what I do professionally, the person says something about it being amazing or inspiring. The benevolent classmates: The story of classmates being kind to a disabled student goes viral simply because they were kind and included that student. For example, they allow the student to shoot the winning score in a game. Or they elect the student prom king. Pose discussion questions appropriate for your audience. What message does portraying these nondisabled people as heroic send about people with disabilities? When people are well-intentioned but do things that are not helpful in terms of how disability is portrayed, is it wrong to challenge what they are doing or saying? What are ways we can challenge those ideas with respect and so that we will be heard? In the same episode of Speechless, Ray ends up giving a speech that was intended to top the one given by the classmate, Donald. He begins with all of the sappy, inspirational stuff he can muster. But then he just can’t continue with it. He says, “My brother isn’t a hero. I know him better than anyone. And in all honesty, he can be a real jerk. He teases me and tortures me…runs me over with his wheelchair…He isn’t brave either. He’s just living his life. And there’s nothing brave about that.” He was met with unenthusiastic, scattered applause and a comment from a teacher, “That did not make me feel good.” No one liked it…except JJ. So we’re left with the same challenge Ray faced. Do we go with what is popular despite the fact that it is not helpful and perpetuates the stereotype? Or do we challenge the stereotype, challenge the dominant narrative and risk doing the unpopular thing. Maybe we can look back to Stella’s video for her guidance. Southwest ADA Center Regional Affiliate – Arkansas • University of Arkansas – Partners for Inclusive Communities

Disability doesn't make you exceptional, but questioning what you think you know about it does. Stella Young “Disability doesn’t make you exceptional but questioning what you think you know about it does.” Thank you for joining me in questioning how we typically portray disability today. Feel free to contact me if you’d like to learn or question more. Southwest ADA Center Regional Affiliate – Arkansas • University of Arkansas – Partners for Inclusive Communities

Contact Me Your Name Email Etc. This resource was developed by Southwest ADA Center Regional Affiliate – Arkansas, a program of the University of Arkansas—with a subaward from the Southwest ADA Center funded by NIDDLR. I’d like to thank the Southwest ADA Center Regional Affiliate of Arkansas, a program of the University of Arkansas Partners for Inclusive Communities for developing the content provided in this presentation. Southwest ADA Center Regional Affiliate – Arkansas • University of Arkansas – Partners for Inclusive Communities