Dr David Adlam and Becks Breslin

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Presentation transcript:

Dr David Adlam and Becks Breslin Leicester’s Research Live – celebrating our success

Spontaneous Coronary Artery Dissection (SCAD) Research Public & Patient Involvement Leicester’s Research Live – celebrating our success

The beginning Leicester’s Research Live – celebrating our success Designed by Freepik Designed by Photoroyalty / Freepik Leicester’s Research Live – celebrating our success

Key milestones Leicester’s Research Live – celebrating our success 2012 Becks has heart attack aged 34 – SCAD diagnosed Connects with other SCAD survivors via social media 2013 Cardiology appointment with Dr Adlam – NEED RESEARCH! Set-up funding from NIHR Leicester Biomedical Research Unit Patients discuss expectations with LCBRU team SCAD study website launched http://scad.lcbru.le.ac.uk 2014 British Heart Foundation funding (2 year study, 100 patients) Leicester’s Research Live – celebrating our success

Key milestones continued 2015 Patient-led charity Beat SCAD launched at 1st UK SCAD Conference Mission: Raise awareness | Provide support | Raise funds for research 2016 Beat SCAD events: walk, 2nd conference, individual fundraising 2017 Beat SCAD donate £25K to research 2018 Beat SCAD donate £3K to research (& working on the next £25K!) Leicester’s Research Live – celebrating our success