Development, validation, and implementation of a questionnaire assessing disease knowledge and understanding in adult cystic fibrosis patients Karen.

Slides:

Advertisements

Similar presentations

ARFI and transient elastography for characterization of cystic fibrosis related liver disease: First longitudinal follow-up data in adult patients Thomas.

Advertisements

Efficacy and safety of Creon�� 24,000 in subjects with exocrine pancreatic insufficiency due to cystic fibrosis Bruce C. Trapnell, Karen Maguiness, Gavin.

Cheryl Cameron, Mark W. Lodes, William M. Gershan

The prevalence of “risky behaviour” in adults with cystic fibrosis

Treatment compliance in children and adults with Cystic Fibrosis

P. Whitaker, N. Shaw, J. Gooi, C. Etherington, S. Conway, D. Peckham

Abaigeal D. Jackson, Christopher H. Goss Journal of Cystic Fibrosis

ARFI and transient elastography for characterization of cystic fibrosis related liver disease: First longitudinal follow-up data in adult patients Thomas.

How does heart rate recovery after sub-maximal exercise correlate with maximal exercise testing in children with CF? Sarah P. Cohen, David M. Orenstein

Avani C. Modi, Crystal S. Lim, Nami Yu, David Geller, Mary H

Megan R. Nelson, Craig R. Adamski, Audrey Tluczek

Amoxicillin–clavulanic acid resistance in fecal Enterobacteriaceae from patients with cystic fibrosis and healthy siblings Gwen Duytschaever, Geert Huys,

Measures of body habitus are associated with lung function in adults with cystic fibrosis: A population-based study Doug L. Forrester, Alan J. Knox,

Laura Viviani, Baroukh M. Assael, Eitan Kerem

Cirrhosis and other liver disease in cystic fibrosis

Katelyn Krivchenia, Don Hayes, Joseph D. Tobias, Dmitry Tumin

Stigma and optimism in adolescents and young adults with cystic fibrosis Kendea N. Oliver, Matthew L. Free, Cody Bok, Karen S. McCoy, Kathleen L. Lemanek,

John Widger, Sarath Ranganathan, Philip J. Robinson

Rate of improvement of CF life expectancy exceeds that of general population— Observational death registration study Matthew N. Hurley, Tricia M. McKeever,

The applicability of urinary creatinine as a method of specimen normalization in the cystic fibrosis population Brandie D. Wagner, Frank J. Accurso,

Controlled clinical trials in cystic fibrosis — are we doing better?

Feasibility of using pedometers to measure daily step counts in cystic fibrosis and an assessment of its responsiveness to changes in health state Bradley.

Anju Anand, Elizabeth Tullis, Anne Stephenson, Preyanka Abhyankar

D. Stevens, P.J. Oades, N. Armstrong, C.A. Williams

Claire J. Tipping, Rebecca L. Scholes, Narelle S. Cox

Molecular detection of an atypical, highly resistant, clonal Pseudomonas aeruginosa isolate in cystic fibrosis patients Deirdre Keating, Mary J. Crowe,

The Journal of Cystic Fibrosis: Sunny perspectives

Amyloidosis in cystic fibrosis: A case series

Efficacy and safety of Creon�� 24,000 in subjects with exocrine pancreatic insufficiency due to cystic fibrosis Bruce C. Trapnell, Karen Maguiness, Gavin.

A.H. Gifford Journal of Cystic Fibrosis

M. Al-Aloul, M. Jackson, G. Bell, M. Ledson, M. Walshaw

Cystic fibrosis related diabetes in an extremely young patient

Antonia V. Bennett, Donald L. Patrick, James F. Lymp, Todd C

Correlation of sweat chloride and percent predicted FEV1 in cystic fibrosis patients treated with ivacaftor Meredith C. Fidler, Jack Beusmans, Paul Panorchan,

E. Tschiedel, H. Grasemann, F. Ratjen Journal of Cystic Fibrosis

Colon Cancer in Cystic Fibrosis patients: Is this a growing problem?

Depression and anxiety in adolescents and adults with cystic fibrosis in the UK: A cross- sectional study Alistair J.A. Duff, Janice Abbott, Carolyn Cowperthwaite,

Ultrasound and magnetic resonance imaging assessment of joint disease in symptomatic patients with cystic fibrosis arthropathy G. Fitch, K. Williams,

Sally H. Pattison, Geraint B. Rogers, Martin Crockard, J

Cytokine gene polymorphisms and severity of CF lung disease

Stenotrophomonas maltophilia in cystic fibrosis: Improved detection by the use of selective agar and evaluation of antimicrobial resistance P. Goncalves-Vidigal,

Nasal polyposis in lung transplant recipients with cystic fibrosis

Narelle S. Cox, Jennifer Follett, Karen O. McKay

Novel concepts in evaluating antimicrobial therapy for bacterial lung infections in patients with cystic fibrosis Geraint B. Rogers, Lucas R. Hoffman,

Nutritional decline in cystic fibrosis related diabetes: The effect of intensive nutritional intervention H. White, K. Pollard, C. Etherington, I. Clifton,

Gender differences in treatment adherence among youth with cystic fibrosis: Development of a new questionnaire Joän M. Patterson, Melanie Wall, Jerica.

Segregation of children with CF diagnosed via newborn screening and acquisition of Pseudomonas aeruginosa Karen O. McKay, Peter J. Cooper, Peter P. van.

Disease disclosure in individuals with cystic fibrosis: Association with psychosocial and health outcomes Adrienne P. Borschuk, Robin S. Everhart, Michelle.

Trends in pathogens colonising the respiratory tract of adult patients with cystic fibrosis, 1985–2005 F.A. Millar, N.J. Simmonds, M.E. Hodson Journal.

Lung clearance index during hospital admission in school-age children with cystic fibrosis Liam Welsh, Christopher Nesci, Haily Tran, Marisol Tomai,

C. Van de Kerkhove, P. C. Goeminne, M. Kicinski, T. S. Nawrot, N

D Peckham, A Watson, K Pollard, C Etherington, S.P Conway

V. Thompson, N. Mayer-Hamblett, M. Kloster, D. Bilton, P.A. Flume

H. White, A.M. Morton, S.P. Conway, D.G. Peckham

J.E. Spahr, R.B. Love, M. Francois, K. Radford, K.C. Meyer

Reviewer Acknowledgment

Daniel J. Smith, Gregory J. Anderson, Scott C. Bell, David W. Reid

D.F. Waterhouse, A.M. McLaughlin, C.G. Gallagher

Lung transplant referral for individuals with cystic fibrosis: Cystic Fibrosis Foundation consensus guidelines Kathleen J. Ramos, Patrick J. Smith, Edward.

CFTR modulators and pregnancy: Our work has only just begun

‘Peeling paint’ dermatitis as a presenting sign of cystic fibrosis

Beta-lactam allergy in adults with cystic fibrosis

Cheryl Cameron, Mark W. Lodes, William M. Gershan

Lutz Goldbeck, Sven Zerrer, Tim G. Schmitz Journal of Cystic Fibrosis

David Adeboyeku, Sandra Scott, Margaret E. Hodson

Increasing resistance of the Liverpool Epidemic Strain (LES) of Pseudomonas aeruginosa (Psa) to antibiotics in cystic fibrosis (CF)—A cause for concern?

Elisabeth P. Dellon, Margaret W. Leigh, James R. Yankaskas, Terry L

Anne K. Swisher, Kathryn Moffett, Linda Baer

Population pharmacokinetics of tobramycin administered thrice daily and once daily in children and adults with cystic fibrosis D.J. Touw, A.J. Knox,

H. White, A.M. Morton, D.G. Peckham, S.P. Conway

Presentation transcript:

Development, validation, and implementation of a questionnaire assessing disease knowledge and understanding in adult cystic fibrosis patients Karen R. Siklosi, Charles G. Gallagher, Edward F. McKone Journal of Cystic Fibrosis Volume 9, Issue 6, Pages 400-405 (December 2010) DOI: 10.1016/j.jcf.2010.07.001 Copyright © 2010 Terms and Conditions

Fig. 1 Distribution of CF knowledge scores. Score frequency and distribution for three sections and total test: A. General knowledge of CF; B. Lung/GI topics; C. Reproduction/genetics; D. Overall test. Journal of Cystic Fibrosis 2010 9, 400-405DOI: (10.1016/j.jcf.2010.07.001) Copyright © 2010 Terms and Conditions