Marco Ouwehand ADI Conference London, 8 March 2012 Alzheimer experience Marco Ouwehand ADI Conference London, 8 March 2012

Points of reference Good care: people are key, determined by caregiver’s ability to establish and maintain a relationship with the patient Core problem care of people with dementia: lack of awareness caregiver of the patient’s different perception of reality (knowledge and understanding) Result: misunderstanding and frustration, difficulty to communicate and establishing and maintaining the necessary relationship Aim: to bridge the gap between the real world and the patients perception of reality Introduction of the Alzheimer Experience and its education programmes in May 2011

alzheimer Experience Free, interactive, web-based media production (total duration 2 hours) 22 scenes, following the lives of 2 people with Alzheimer’s through all stages of the disease (except GDS 7) Evidence based experiences (Trimbos Institute) Alzheimer Nederland content partner Quality level of mainstream cinema movie Unique feature: choice of perspective within each scene Different reality using Rotoscope animation technique Scene specific relevant information about the disease (‘expert’ and database)

demo DEMO

status & Statistics Launched 30 May 2011 166.621 visits 115.340 unique visitors Average time per visit: 7.59 minutes Query: 52% informal caregivers, 42% professional caregivers and 6% general public Dutch situation: 16,5 mio inhabitants, 235.000 people with dementia, 700.000 informal caregivers and 460.000 professional caregivers Moving to internationalisation

www.alzheimerexperience.nl