Cystic fibrosis research in allied health and nursing professions

Slides:



Advertisements
Similar presentations
Long-term non-invasive ventilation in cystic fibrosis — Experience over two decades William G. Flight, Jonathan Shaw, Susan Johnson, A. Kevin Webb, Andrew.
Advertisements

Use of the insulin pump in treat cystic fibrosis related diabetes Dana S. Hardin, Julie Rice, Mark Rice, Randall Rosenblatt Journal of Cystic Fibrosis.
Cheryl Cameron, Mark W. Lodes, William M. Gershan 
Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery  J. Abbott, J.S. Elborn, A.M. Georgiopoulos,
Treatment compliance in children and adults with Cystic Fibrosis
Megan W. France, Mary E. Dodd, John R. Govan, Catherine J. Doherty, A
Indicators of pulmonary exacerbation in cystic fibrosis: A Delphi survey of patients and health professionals  Fiona McCourt, Brenda O'Neill, Ian Logan,
Volume 150, Issue 6, Pages (December 2016)
R. Roberts, L. Speight, J. Lee, L. George, R. I. Ketchell, D. Lau, J
Felix Ratjen, Paul Koker, David E
How does heart rate recovery after sub-maximal exercise correlate with maximal exercise testing in children with CF?  Sarah P. Cohen, David M. Orenstein 
Avani C. Modi, Crystal S. Lim, Nami Yu, David Geller, Mary H
Single high-dose oral vitamin D3 (stoss) therapy — A solution to vitamin D deficiency in children with cystic fibrosis?  Darren Shepherd, Yvonne Belessis,
Megan R. Nelson, Craig R. Adamski, Audrey Tluczek 
Urinary incontinence in 9���16��year olds with cystic fibrosis compared to other respiratory conditions and a normal group  W.J. Browne, C.J. Wood, M.
Measures of body habitus are associated with lung function in adults with cystic fibrosis: A population-based study  Doug L. Forrester, Alan J. Knox,
Microbiological yield from induced sputum compared to oropharyngeal swab in young children with cystic fibrosis  Marco Zampoli, Komala Pillay, Henri Carrara,
Laura Viviani, Baroukh M. Assael, Eitan Kerem 
Defining antimicrobial resistance in cystic fibrosis
Cirrhosis and other liver disease in cystic fibrosis
The ease of breathing test tracks clinical changes in cystic fibrosis
Geneviève Héry-Arnaud, Sébastien Boutin, Leah Cuthbertson, Stuart J
Controlled clinical trials in cystic fibrosis — are we doing better?
Feasibility of using pedometers to measure daily step counts in cystic fibrosis and an assessment of its responsiveness to changes in health state  Bradley.
Anju Anand, Elizabeth Tullis, Anne Stephenson, Preyanka Abhyankar 
D. Stevens, P.J. Oades, N. Armstrong, C.A. Williams 
Claire J. Tipping, Rebecca L. Scholes, Narelle S. Cox 
Cystic fibrosis mortality trend in Italy from 1970 to 2011
Controversies with Kalydeco: Newspaper coverage in Canada and the United States of the cystic fibrosis “wonder drug”  Christen Rachul, Maeghan Toews,
Gerd Döring, Patrick Flume, Harry Heijerman, J. Stuart Elborn 
Implementation of European standards of care for cystic fibrosis ��� Control and treatment of infection  J.S. Elborn, M. Hodson, C. Bertram  Journal of.
The Journal of Cystic Fibrosis: Sunny perspectives
Efficacy of high dose phylloquinone in correcting vitamin K deficiency in cystic fibrosis  Donna Drury, Vijay Laxmi Grey, Guylaine Ferland, Caren Gundberg,
A.H. Gifford  Journal of Cystic Fibrosis 
M. Wouthuyzen-Bakker, F.A.J.A. Bodewes, H.J. Verkade 
Treatment of resistant distal intestinal obstruction syndrome with a modified antegrade continence enema procedure  I.J. Clifton, A.M. Morton, N.S. Ambrose,
Initial evaluation of the Parent Cystic Fibrosis Questionnaire—Revised (CFQ-R) in infants and young children  Adrianne N. Alpern, Lyndia C. Brumback,
Cystic fibrosis related diabetes in an extremely young patient
Inhalation solutions — Which ones may be mixed
Association between practice patterns and body mass index percentile in infants and young children with cystic fibrosis  Raj Padman, Lloyd N. Werk, Gabriela.
E. Tschiedel, H. Grasemann, F. Ratjen  Journal of Cystic Fibrosis 
Direct comparison of in vitro susceptibility of wildtype clinical Pseudomonas aeruginosa isolated from adult patients with cystic fibrosis (CF) to TOBI®
Colon Cancer in Cystic Fibrosis patients: Is this a growing problem?
Depression and anxiety in adolescents and adults with cystic fibrosis in the UK: A cross- sectional study  Alistair J.A. Duff, Janice Abbott, Carolyn Cowperthwaite,
Sally H. Pattison, Geraint B. Rogers, Martin Crockard, J
Anastasios Lekkas, Khin M. Gyi, Margaret E. Hodson 
Narelle S. Cox, Jennifer Follett, Karen O. McKay 
Paternity in men with cystic fibrosis: a retrospective survey in France  Ingrid Duguépéroux, Dominique Hubert, Stéphane Dominique, Gil Bellis, Marc De.
Nutritional decline in cystic fibrosis related diabetes: The effect of intensive nutritional intervention  H. White, K. Pollard, C. Etherington, I. Clifton,
Gender differences in treatment adherence among youth with cystic fibrosis: Development of a new questionnaire  Joän M. Patterson, Melanie Wall, Jerica.
Segregation of children with CF diagnosed via newborn screening and acquisition of Pseudomonas aeruginosa  Karen O. McKay, Peter J. Cooper, Peter P. van.
Disease disclosure in individuals with cystic fibrosis: Association with psychosocial and health outcomes  Adrienne P. Borschuk, Robin S. Everhart, Michelle.
Trends in pathogens colonising the respiratory tract of adult patients with cystic fibrosis, 1985–2005  F.A. Millar, N.J. Simmonds, M.E. Hodson  Journal.
Successful treatment of cepacia syndrome with a combination of intravenous cyclosporin, antibiotics and oral corticosteroids  Francis J. Gilchrist, A.
V. Thompson, N. Mayer-Hamblett, M. Kloster, D. Bilton, P.A. Flume 
Table of contents The Journal for Nurse Practitioners
H. White, A.M. Morton, S.P. Conway, D.G. Peckham 
J.E. Spahr, R.B. Love, M. Francois, K. Radford, K.C. Meyer 
Table of contents The Journal for Nurse Practitioners
Gut dysbiosis in cystic fibrosis
CFTR modulators and pregnancy: Our work has only just begun
‘Peeling paint’ dermatitis as a presenting sign of cystic fibrosis
L. Nshimyumukiza, A. Bois, P. Daigneault, L. Lands, A. -M. Laberge, D
Cheryl Cameron, Mark W. Lodes, William M. Gershan 
Appendix D – Survey Questionnaire
Lutz Goldbeck, Sven Zerrer, Tim G. Schmitz  Journal of Cystic Fibrosis 
Khin M. Gyi, Margaret E. Hodson, Magdi Y. Yacoub 
David Adeboyeku, Sandra Scott, Margaret E. Hodson 
Elisabeth P. Dellon, Margaret W. Leigh, James R. Yankaskas, Terry L
H. White, A.M. Morton, D.G. Peckham, S.P. Conway 
Presentation transcript:

Cystic fibrosis research in allied health and nursing professions Judy M. Bradley, Susan Madge, Alison M. Morton, Alexandra L. Quittner, J. Stuart Elborn  Journal of Cystic Fibrosis  Volume 11, Issue 5, Pages 387-392 (September 2012) DOI: 10.1016/j.jcf.2012.03.004 Copyright © 2012 Terms and Conditions

Fig. 1 Overview of Delphi survey to identify priority research areas and themes. Journal of Cystic Fibrosis 2012 11, 387-392DOI: (10.1016/j.jcf.2012.03.004) Copyright © 2012 Terms and Conditions