Physician / Patient Future Collaboration Opportunities

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Presentation transcript:

Physician / Patient Future Collaboration Opportunities Ricky Safer CEO, PSC Partners Seeking a Cure PSC Patient www.pscpartners.org contactus@pscpartners.org © 2016 PSC Partners Seeking a Cure

© 2016 PSC Partners Seeking a Cure

13 Years of Established programs Annual Conferences Competitive International Grant Program – 1.8M USD Patient-Driven Longitudinal International Registry – 850 participants Dissemination Channels for support, education and research Database of 4,000 3 Facebook groups Canadian PSC Partners affiliate Active Australian and Israeli groups Mentorship program Website Research Grant information Comprehensive PSC Literature Site Clinical Trials postings Brochures and other patient resources © 2016 PSC Partners Seeking a Cure

Current Collaborations Scientific / Medical Advisory Committee – Grant Program and Registry Registry data presented at AASLD / EASL / DDW Patient perspective presented at 2016 FDA Workshop External Advisory Committee – Mayo Clinic Carlos Endowment Intercept Pharmaceuticals Practice to Policy Grant Long-term Collaboration with PSC Support (UK) Providing protocol / PRO support to pharmaceuticals © 2016 PSC Partners Seeking a Cure

© 2016 PSC Partners Seeking a Cure