Welcome Brian Silver, President NFXF Board of Directors We want to take this opportunity to thank our sponsors for this event. Your support as made this Summit possible. We know how important it is for you to come together with other leaders, to share, to brainstorm and to re-energize. Thank you for making this a priority. Presenting Level -

Thank you to our generous sponsors Presenting Sponsors Presenting level – the Fragile X Resource Center of Missouri and the Greater Chicago Fragile X

Thank you to our generous sponsors Sustaining Sponsor Sustaining level sponsor – the Greater Atlanta Fragile X

Thank you to our generous sponsors Supporting Level Sponsors Heartland Fragile X Alliance Fragile X Society of Connecticut New Jersey Fragile X Community Support Group Central Illinois Fragile X Friend Level Sponsors Kansas Fragile X Group Fragile X Association of Michigan Fragile X Central Alabama Fragile X Resource Group of Greater New York City Supporting level – Heartland Fragile X Alliance Fragile X Society of Connecticut New Jersey Fragile X Community Support Group Central Illinois Fragile X Friend Level – Kansas Fragile X Group Fragile X Association of Michigan Fragile X Central Alabama Fragile X Resource Group of Greater New York City

Director, Volunteer Programs Overview of the Day Paula Lipford Director, Volunteer Programs

Together, We’re Stronger We can have greater impact together by: Unifying our efforts Communicating our mission Funding our mission Consistently supporting and connecting families Planning for effective mission delivery

You have on your table a copy of the 2016 Annual Impact Report You have on your table a copy of the 2016 Annual Impact Report. Most of you have already seen this, as it was emailed out to everyone several weeks ago. It is also posted on the NFXF website. It gives a very clear picture of the impact the Foundation had in 2016. you also heard in the video last night a recap of some of the other important progress made during the last few years – including the Foundation’s work in forming the FX CRC and the establishment of 30? clinics since the program started. The foundation is also integrally involved in research on Pre-mutation Carriers and founded the FXTAS International Consortium. We are the only organization providing key support to finding answers for these conditions. These are just a few of the initiatives funded and supported by the Foundation.   You have been asking for more transparency and clarity around the Foundation’s investments and a better idea of how we will have expanded impact in the future– If you will take a look at page 3 of the impact report – this is something we have added in response to your questions. It outlines more specifically what is funded under each of those headings.