Margret Skuladottir, MD, Malmö SAH

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Presentation transcript:

A descriptive analysis of the Swedish palliative research network - PANIS Margret Skuladottir, MD, Malmö SAH Staffan Lundström, MD, Stockholms Sjukhem

Palliative research network in Sweden - PANIS Aim of the study To survey all participating units concerning: Organization Patient selection Contents of care Documentation 2018-12-30 Palliative research network in Sweden - PANIS

Palliative research network in Sweden - PANIS Methods Questionnaire with 38 questions designed. Pilot test. Sent to all 43 units by e-mail in December -04. Completed by the local members of the network. 42 units answered Answers analyzed in Excel database. 2018-12-30 Palliative research network in Sweden - PANIS

Organisation-affiliation all 42 units replied 2018-12-30 Palliative research network in Sweden - PANIS

Starting year for units 2018-12-30 Palliative research network in Sweden - PANIS

The doctors specialities all 42 units replied 2018-12-30 Palliative research network in Sweden - PANIS

Organization all 42 units replied Number of units with respective service 29 24 6 16 2018-12-30 Palliative research network in Sweden - PANIS

Numbers of doctors per patient 2018-12-30 Palliative research network in Sweden - PANIS

Number of nurses per patient 2018-12-30 Palliative research network in Sweden - PANIS

Number of units having different occupational groups As members of As consultants to the team the team Staff nurse (usk) 24 0 Physiotherapists 32 5 Occupational therapists 31 4 Sociologists 33 1 Psychologists 0 6 Priests / deacons 13 14 Dietician 8 14 2018-12-30 Palliative research network in Sweden - PANIS

Palliative research network in Sweden - PANIS Diagnosis Cancer mean 90% of all patients (range 70-100% ) Non-cancer mean 10% (range 1-10%) Heart failure <1% - 10% CPD <1% - 14% Neurological diseases <1% - 6% HIV / AIDS <1% - 2,5% 45% of the units include patients < 18 years. 2018-12-30 Palliative research network in Sweden - PANIS

Number of patients or ”beds” 12 out of 16 counselling teams had no limitations regarding number of patients able to enrol. 2018-12-30 Palliative research network in Sweden - PANIS

Palliative research network in Sweden - PANIS Mean duration of care 2018-12-30 Palliative research network in Sweden - PANIS

Number of deaths per year 2018-12-30 Palliative research network in Sweden - PANIS

How many of the 42 units used symptom assessment tools ? 41 out of 42 units replied 2018-12-30 Palliative research network in Sweden - PANIS

Teaching and research 93% of units do teaching 24% of units have some form of research activity. 2018-12-30 Palliative research network in Sweden - PANIS

Palliative research network in Sweden - PANIS Documentation Paper 29% Computer 70% 2018-12-30 Palliative research network in Sweden - PANIS

Palliative research network in Sweden - PANIS Discussion Data collection was done using a questionnaire developed by the authors. High response rate A few questions were difficult for some units to answer due to the structure of their databases. Large variation between the units might reflect: different local needs and conditions, differences in patient selection in the units, differences in the definition of services. 2018-12-30 Palliative research network in Sweden - PANIS

Palliative research network in Sweden - PANIS Conclusions Still largely focused on cancer 20% of cancer deaths in Sweden within PANIS Large variation between different units (e.g. duration of care). PANIS provides a growing database, facilitating research in palliative care. 2018-12-30 Palliative research network in Sweden - PANIS