New beginnings – the first 7 months Yorkshire and Humber Congenital Heart Disease Network New beginnings – the first 7 months Debra Wheeler General Manager

So what have we been up to ? Yorkshire and Humber Congenital Heart Disease Network So what have we been up to ?

Lead Clinician Dr Elspeth Brown General Manager Debra Wheeler Lead Nurse Jo Quirk ACHD Specialty Lead Dr Kate English Admin Assistant Mireia Moriel

Leeds General Infirmary D Floor Brotherton Wing Leeds General Infirmary 0113 3926288 debra.wheeler1@nhs.net

Visited Local Cardiology Centres Meetings with PECs and Service Managers Meeting with NHSE Specialist Commissioning managers Attended PIC and NIC/ Obstetric Network events

- Purpose of the Network - What works well ? Baseline questionnaire - Purpose of the Network - What works well ? - What are the challenges ? - Priorities in Year 1 Self assessment against the standards Patient and family engagement events to come

- Network policies and guidelines - Education Yorkshire and Humber Congenital Heart Disease Network website https://www.networks.nhs.uk/nhs-networks/yorkshire-and-humber-congenital-cardiac-network Network Business - Notifications - Agendas and Minutes - Network policies and guidelines - Education Different from http://leedscongenitalhearts.com Work in progress

How to properly listen and respond to patients and families? What do we really want to achieve in 5 years time ? How to properly listen and respond to patients and families? What should the Network Board look like ? How will we know if we’re successful? Who are we accountable to ?

Baseline Questionnaire Yorkshire and Humber Congenital Heart Disease Network Baseline Questionnaire Themes from the responses

Providing care locally Shared guidelines/protocols Strategy development Providing care locally Shared guidelines/protocols Education and Training Achieving the standards Improving communication Doing improvement work Representing Y+H nationally

Regular outreach clinics Good working relationships Regular outreach clinics 24/7 advice from Leeds Regular network meetings Uniform policies and procedures Effective leadership

Training and availability of nursing staff in L3 units Lack of access to echo Long clinic waits Poor communication about what happens to patients in Leeds Difficulty sharing images No PEC in some units LGI PICU capacity Insufficient trained sonographers Equipment replacement

Education for PECs and nurses Developing guidelines / SOPs Education for PECs and nurses Assessing all units against the national standards Sharing lessons learned Train more people to do echo Review service requirements against population size Website Improved communications Telemedicine

Th The end of the beginning Induction Information gathering Making connections Putting down foundations Scoping what needs to be done Re-launching the Network Now for the real work…….

Yorkshire and Humber Congenital Heart Disease Network Thankyou

Yorkshire and Humber Congenital Heart Disease Network Groupwork

What does an outstanding network look and feel like ? Yorkshire and Humber Congenital Heart Disease Network What does an outstanding network look and feel like ?

Yorkshire and Humber Congenital Heart Disease Network What are the things we should obsess about as the Yorkshire and Humber CHD Network ?

Yorkshire and Humber Congenital Heart Disease Network How should we engage with our children and families and our adult patients ?