Personal Health Budgets: including people with learning disabilities Sue Turner, NDTi Alison Giraud-Saunders

Why we developed the resource People with learning disabilities not always included Self-directed support can lead to better outcomes … … especially for people with complex needs Consider in relation to Winterbourne View programme

How we developed the resource We worked with three sites + network Interviews with other sites/key stakeholders Guide organised around ‘markers of progress’

Who can have a personal health budget? People on NHS CHC: From April 2014 - right to ask From October 2014 - right to have a PHB Other people with long term health conditions or mental health problems

What does this mean for services? Planning with one person at a time, while ensuring access to the range of specialist services Wide range of support required – not just health care Including people who lack capacity Involving people with learning disabilities and family carers ‘Can do’ approach to improving choice and control

Important things to think about (1) Strong leadership Working together with people and families Getting the message across Providing clear information Thinking about the whole person

Important things to think about (2) Treating people as equal partners – a positive approach to risk Providing support to help people plan People can take their budgets in the way that suits them Checking to see how things are going

URL: Contacts: Sue Turner sue.turner@ndti.org.uk Alison Giraud-Saunders alisongs@btinternet.com