Focus of research group (I)

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Presentation transcript:

Focus of research group (I) Name PI: B.J. Mulder/B.J.Bouma Department, UMC: Cardiology Size of research group: 15 Current mission: To reduce the burden of cardiac disease in adults with congenital heart disease Vision To deliver excellent patientcare, education and science in the field of ACHD Aim To improve patient care Care-path, website information, full package To strengthen national position Relations with CAHAL, NVVC, WG, NHI To extend international postion Using Concor for research on epidemiology, long term outcome and clinical trials

Focus of research group (II) Current expertise in ACHD research past 10 years: PAH (5 PhD) Heart failure (2 PhD) Epidemiology (3 PhD) Genetics (3 PhD) Imaging (3 PhD) Marfan (4 PhD) eHealth (3 PhD) Arrhythmias ( 2PhD) Percutaneous Interventions (1 PhD) Current funding Hartstichting Actelion Novartis Bayer BMS

Future plans Short term (1-2 year) plan: Concor organisation structure ( Kincor?) Unraveling heart failure in TGA European network ACHD Extension international registries Necessary infrastructure: Funding PhD students Statistical and “big data” expertise Study nurse Long term (>2 year) plan: Embedding Concor European and transatlantic studies Structural funding Collaboration in ACS: Excellent collaboration in Cahal.