Gaining trust among the migrant and minority communities throughout the research process in Finland Satu Jokela, Anneli Weiste- Paakkanen, Sinikka Kytö, Anu Castaneda, Päivikki Koponen, Hannamaria Kuusio 11.1.2019

Experiences of three minority surveys in Finland Migrant Health and Wellbeing Survey (2012) (N=1000, approximately 70% participation) Survey on work and well-being among people of foreign origin (2015) (N=5449, approximately 66% participation Roma Wellbeing Study, ongoing 11.1.2019

Differences and similarities Sample design – Population Register versus self - identification Methods: computer- assisted structured interview, a health examination and a short interview, a questionaire, translated interviews Culturally sensitive approach Bilingual or a community member study personnel Involving participants in design, conducting and reporting the study Co-operation between authorities 11.1.2019

Field personnel’s experiences Data from qualitative interviews among the field personnel How to motive the participants? What is the reason for non-participation? Results Participant’s mistrust towards the authorities led to non- participation (fear of ethnic profiling.) Shared cultural background both hinders and promotes participation (fears of data secrecy.) 11.1.2019

Best practices in Data collection Sufficient resources for building trust (in co-operation between different actors) (Hearings, focus group interviews, ensuring cultural appropriateness of the study content, translating questionaires, employing community mediators). Employer’s support for the field personnel: guiding and training, respecting intercultural knowledge and skills, support and trust, regular meetings and communication. 11.1.2019

Conclusions Most important motive for participation is understanding the aim of the study > development of better services. Communication is the key to success Mutual co-operation creates trust among minority communities and authorities. It increases the ethical value of research when the study results can be utilized to benefit the community. 11.1.2019