Jim Matthews Arizona Biomedical Research Commission Jungdae Kokotov 5AM Solutions July 27, 2010 www.5amsolutions.com.

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Presentation transcript:

Jim Matthews Arizona Biomedical Research Commission Jungdae Kokotov 5AM Solutions July 27,

Webinar Technical Details Type questions in advance; click sendQuestions + answers appear in chat window During discussion time, raise hand to speak

The Issue of Tissue Biospecimens are at the core of discovery-oriented scientific research. Issues: Collecting Annotating Finding Obtaining

About ABRC Funding Proceeds from the Sale of Tobacco Products Funding Arizona Lottery Arizona Biomedical Research Commission Research Program Arizona Translational Resource Network (AzTransNet)

What Led Us Here Difficulty in finding tissue for research The Tissue Issue January 2007 Anna Barker January 2007

Our Process RFPResponsesSelection CriteriaDeciding Factors5AM Solutions The Solicitation

Our Vision Sun Health Research Institute

Arizona Biospecimen Consortium Governance Committee Business Model Commitments Governance Model Regulatory Compliance Agreements Standards Committee Standardized Collection Procedures Minimum Data Set Federal Standards Tissue Types/ Informed Consent Quality Control A Consortium of Institutional Partners

Our Challenges Partnership buy-in Synchronicity of technology + governance

From Vision to Working System Agile processes Engaged stakeholders 5AM participation in Consortium meetings

Biolocator: High Level Workflow 11

How We Integrate – and Share – the Data ABL Commercial BioBanking Solution Custom Application CBM – NCIs caGrid Automatic data pullPeriodic data import

Share Information Over NCIs caGrid

Our Technical Challenges Mapping data Fields Diverse systems, diverse data fields How do we find a common model…? NCIs Common Biorepository Model Values Diverse systems, diverse data values How do we find a common disease vocabulary…? SNOMED-CT Collection Date Quality Rating Specimen Type Tumor Rating Disease Type Liquid Nitrogen Paraffin Block Collection Date Quality Rating Specimen Type Tumor Rating Disease Type Liquid Nitrogen Paraffin Block Date Time Tissue Type Cancer Boolean Lab Report Freetext Date Time Tissue Type Cancer Boolean Lab Report Freetext Malignant Tumor of Breast Breast Carcinoma Breast Cancer Breast Cancer Type 1 Susceptibility Protein

ABRCs Future Role in the Arizona Biomedical Consortium Funding the ABL program Demonstrating usefulness Assisting institutional partners Equipment Personnel Integration Support

Next Steps for the Arizona Biospecimen Consortium Develop a Platform for Future Services Cord blood bank Cord blood patient registry Trauma center data warehouse linkage Expand our Partners + Participants Phoenix Indian Medical Center Phoenix VA Others

Contact Us James Matthews Deputy Director Arizona Biomedical Resource Commission Jungdae Kokotov Project Manager Biolocator 5AM Solutions Arizona Biospecimen Locator Demo:

??? What else would you like to discuss – open discussion of your questions, topics, concerns