The GA2LEN Urticaria Center of Reference and Excellence (UCARE) programme and network is part of the GA2LEN center of reference and excellence (CORE)

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The GA2LEN Urticaria Center of Reference and Excellence (UCARE) programme and network is part of the GA2LEN center of reference and excellence (CORE)
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Presentation transcript:

The GA2LEN Urticaria Center of Reference and Excellence (UCARE) programme and network is part of the GA2LEN center of reference and excellence (CORE) initiative www.ga2len-ucare.com 2 2

Who is GA²LEN? A consortium of 31 partners www.ga2len.net

What does GA²LEN do? Coprogrammes research in allergy Accelerates the application of research results Creates platforms & tools for research and dissemination Creates awareness and disseminates better care www.ga2len.net

What is the GA²LEN CORE initiative? Disease-specific networks of centers of reference and excellence for selected disease Promote research, awareness and education UCARE (urticaria), ADCARE (atopic dermatitis), ANACARE (anaphylaxis) www.ga2len.net

GA2LEN Urticaria Centers of Reference and Excellence (GA2LEN UCAREs) www.ga2len-ucare.com

GA2LEN Urticaria Centers of Reference and Excellence (GA2LEN UCAREs) Aims Provide excellence in urticaria management Increase the knowledge of urticaria by research, studies and education Promote the awareness of urticaria by advocacy activities www.ga2len-ucare.com

What does it take to be a GA2LEN UCARE? Requirements Infrastructure/setup 15 Management of urticaria 9 Clinical & Basic Research 5 Education 1 Advocacy 2 32

Requirements Apply Audit Certification How to become a GA2LEN UCARE www.ga2len-ucare.com 9 9

Requirements Apply Audit Certification How to become a GA2LEN UCARE Download application form: www.ga2len-ucare.com Complete, sign and send to: office@ga2len.net 10 10

The GA2LEN UCARE audit process www.ga2len-ucare.com 11 11

The GA2LEN UCARE audit process www.ga2len-ucare.com 12 12

The GA2LEN UCARE audit process www.ga2len-ucare.com

The GA2LEN UCARE network (Sep 2018)

The GA2LEN UCARE network (Sep 2018) Certified Centers: 67 Applicant Centers: 19 Interested Centers: 13 Countries with UCAREs: 30 Africa: 1 (1 UCARE) Asia: 9 (14 UCAREs) Australia and Oceania: 1 (1 UCARE) Europe: 12 (31 UCAREs) North America: 3 (6 UCAREs) South America: 4 (14 UCAREs) www.ga2len-ucare.com

GA2LEN UCARE meetings www.ga2len-ucare.com

GA2LEN UCARE meetings www.globalurticariaforum.org

www.urticaria-registry.com GA2LEN UCARE projects www.ga2len-ucare.com 18

GA2LEN UCARE projects www.ga2len-ucare.com CURE The global chronic urticaria registry (lead investigator: Karsten Weller, karsten.weller@charite.de) Status: RECRUITING PREGCU Pregnancy and chronic crticaria: characteristics and outcomes of pregnancy in chronic urticaria patients (lead investigator: Emek Kocatürk, dremekozgur@gmail.com) CURICT Chronic urticaria – patient use of information and communication technologies (lead investigator: Ivan Cherrez, ivancherrez@gmail.com) UVERSICU Urticarial vasculitis versus chronic spontaneous urticaria Natural history, disease course and response to treatment (lead investigator: Hanna Bonnekoh, hanna.bonnekoh@charite.de) Status: IN PREPARATION www.ga2len-ucare.com 19

Sponsors of the GA2LEN UCARE network and programme Status Uriach silver Courage+Khazaka bronze Moxie Aralez

www.ga2len-ucare.com

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