How do we unify data collection? Paper, Digital, Screening Group Education, Data Storage, Data Transfer, Follow-up February 2017

Think Tank Survey Monkey 2016 Follow-up Survey 39 questions

Categories Data about screening groups themselves Data about the screening protocols and what data is being collected and who is helping collect and analyze the data How is the data obtained and stored? Follow-up after screening Participation in a national data repository?

3. How is the data obtained and stored Is the information protected?

4. Follow-up after screening

5. Participation in a national data repository?

Key Discussion Points How do we acquire the data? H and P ECG Paper Digital Other ECG Echocardiography

Key Discussion Points How do we educate the screening groups to do it uniformly? Train the trainer A teaching manual Web-based review Web-based live

Key Discussion Points How do we store the data and how do we transfer the data to storage? Internet and web based How are programs doing it this way currently? IT partnership Funding for the storage, IT partnership, web-based support, etc.

Key Discussion Points How do we insure the follow-up for individual patients? Information transmission (screening results) Uniform decision about criteria warranting follow-up with primary care takers Follow-up to make sure that this occurs Longer-term follow-up to assess and document outcome Other issues/questions with regard to follow-up

Thanks to everyone for their hard work and for the discussion that is about to occur