Greater Manchester Cancer Health and Wellbeing Events Lindsey Wilby Macmillan Project Manager – Living with and Beyond Cancer December 2018

What are they? (Group) events or programmes which: Greater Manchester Cancer What are they? (Group) events or programmes which: Provide the right information at the right time Maximise health and well being: from diagnosis to recovery (or improved palliative experience) Help to manage the short and long term effect cancer and treatments can often have on lives Equipping for and supporting self- management

Why should we offer them? Benefits to patients Greater Manchester Cancer Why should we offer them? Benefits to patients Group discussions and peer to peer support can allow patients to feel less isolated Increased confidence in self management and participating in care leading to feeling more in control Increased awareness of side effects, symptoms and warning signs Reduced anxiety and improved emotional wellbeing Knowledge of local services that are available and knowing how to access support whenever needed More confident in ability to make positive lifestyle change Better understanding of their ‘new normal’ Reference: Macmillan Cancer Support (2017) Holistic Needs Assessment Care and Support Planning

Why should we offer them? Evidence of long-lasting benefits Greater Manchester Cancer Why should we offer them? Evidence of long-lasting benefits A 2016 study found: 84% of patients who attended a H &WB intervention reported significantly improving their diet 57% reported using self help to reduce their stress and anxiety levels 49% felt their close relationships had improved The study also found that there were statistically and clinically proven improvements in wellbeing measures which lasted up to a year Reference: Polley et al.,2016: Using a Whole Person Approach to Support People With Cancer: A Longitudinal, Mixed-Methods Service Evaluation. Integrative Cancer Therapies. 15; 4: 435-445. …And we therefore have a target for every patient to be offered one

What should they include? Greater Manchester Cancer What should they include? Expert advice on health promotion To minimise risk of recurrence and support healthy living particularly physical activity, nutrition and healthy weight management, smoking cessation. Support to ensure that individuals have the confidence and skills to manage their condition themselves For example referral onward to rehabilitation and psychological support services as appropriate and signposting to local support groups, voluntary sector organisations or buddying services. Information about complementary therapies How these therapies may help to facilitate wellbeing. Advice on adjusting to life after treatment And addressing fears of cancer recurrence.

What should they include? Greater Manchester Cancer What should they include? Information on signs and symptoms of recurrence and potential consequences of treatment All events should clearly convey and reinforce the methods to activate fast-track access back into the system if there are any concerns regarding new symptoms or recurrent disease. Signposting to financial and benefits advice Specific issues relevant to the individual’s type of cancer For example: communication difficulties, dysphagia, colostomy care, prosthetic care, early detection and management of lymphoedema, body image and sexual functioning. Signposting to work support/vocational rehabilitation Signposting to services for patients including work support and information that patients and carers can share with their employers. Management of common symptoms For example fatigue.

How should they be delivered? Greater Manchester Cancer How should they be delivered? generic for all long term conditions, including cancer generic for all cancers divided by treatment completed and in remission vs. those living with their cancer across several tumour types (e.g. pelvic cancers) tumour specific targeted at patients from one or more Trusts single events a series of events/workshops online – webinars, YouTube clips a combination of the above

Greater Manchester Cancer

Living with Secondary Breast Cancer (SBC) programme 10:00-15:30 Greater Manchester Cancer Living with Secondary Breast Cancer (SBC) programme 10:00-15:30 Speakers in Auditorium 09:30-10:00 Meet and greet, tea and coffee 10am-10:05 Welcome Claire Gaskell 10:05-10:15 What is SBC? A patient’s perspective 10:15-10.40 Red flag symptoms, what do I need to know? Claire Gaskell 10:40-11:00 Diet and SBC Mary Pegington, Research Dietician, Genesis Centre 11.00-11.40 Current treatment and developments in research Dr Sacha Howell 11.40-12.00 Open microphone question session 12.00-1.00 Lunch with stalls in foyer offering information from different service providers 1.00-1.30 Supportive Care & questions Tracey Coleby Palliative Care CNS

Living with Secondary Breast Cancer (SBC) programme (cont.) Greater Manchester Cancer Living with Secondary Breast Cancer (SBC) programme (cont.) 1.35-2.20 Break out session 1 2.20-2.30 Tea/coffee 2.30-3.15 Break out session 2 3.15-3.30 Guided mindfulness/relaxation exercise Summing up and close Breakout sessions: 45 mins each. Choose 2 prior to event, each breakout session will be delivered twice. Living with uncertainty Relationships and communication Fatigue Management Keeping Active with Secondary Breast Cancer Support for carers

BUT What is gold standard? What is “good enough”? Greater Manchester Cancer BUT What is gold standard? What is “good enough”? …A generic, Trust-wide, marketplace based event cannot offer the same depth of content as a bespoke tumour- specific event…but the latter can’t offer access to local services, AND We don’t have the necessary resources, either financial or human, to deliver this level of intervention, face to face, for every cancer patient in GM. …And even if we did, we can’t guarantee attendance (even with appointment letters; even more challenging in certain localities/populations)

How are you currently delivering HWBE? Greater Manchester Cancer How are you currently delivering HWBE? What would a sustainable offer look like? Compare and contrast the pros and cons of two different delivery methods Are there examples of best practice that we can learn from?