Community Advisory Board

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Presentation transcript:

Community Advisory Board Toni Kuhlman Advisory Board Chair

Background: Then Diagnosed in March 2014, 61 years old No symptoms Chance accident led to x-ray (thanks to this guy ) Stage IIIB non-small cell adenocarcinoma of the lung at diagnosis (right lung & lymph nodes) Found hope in the Barrett Center after initial grim diagnosis elsewhere Radiation, chemo, surgery to remove 30% of my lungs, clinical trials, hair loss, nausea, etc. – it’s not an easy road but you have to stay positive and lean on support system!

Background: Now 4.5 years after diagnosis Stage IV at present, after spread to knee, pelvis, & left lung Currently on break from treatment after 20 months of continuous chemotherapy Lingering side effect of vertigo (since June 2017) due to destroyed nerve in ear that controls balance, a side effect of chemo Current overall prognosis is great – thanks to Drs. Barrett, Morris, & Starnes - & UCCI!

What is the Lung Cancer Community Advisory Board? Group consists of volunteers and folks from UC passionate about raising funds for UCCI Group meets regularly to plan and brainstorm fundraising that can benefit UCCI Funds raised can drive research so desperately needed for new treatments and, hopefully, a cure!

Board Members Toni Kuhlman, Chair Thomas H. Bergman, ESQ Shannon Dunn Michele Roll Jeff Schrand Tera Winther Clara Kuhlman Liz Cole Erin Hart Laureen McCorkle Dr. John Morris Dr. Sandra Starnes

Mission and Priorities of the Board Serve as advocates of UCCI Comprehensive Lung Cancer Center Help increase visibility of the UCCI lung cancer program in our community Contribute to the strategic planning process of the Comprehensive Lung Cancer Center Assist in the fundraising efforts for the lung cancer center by attending center events and making key community connections

My Personal Goals for the Board Raise awareness of lung cancer statistics, lack of funding for research & treatment Raise awareness of lung cancer screening given it’s potential to increase survival Educate families, friends, caregivers of those diagnosed with lung cancer – help give them the tools to support their loved one and find support for themselves as well Recruit more members!

Why Lung Cancer Fundraising is so Vital So important because lung cancer, in particular, impacts so many: 1 in 16 Americans will be diagnosed in their lifetime 60 – 65% of new lung cancer diagnoses are among people who have never smoked or are former smokers Accounts for 25% of all cancer deaths More lives lost to lung cancer than to colorectal, pancreatic, breast, and prostate cancers combined Source: longevity.org

Slice Night! Top fundraising event for the board 2018 was 5th year Presto/PFG & Cincinnati Magazine sponsor 2018 raised $37k Event growing annually – has raised $150k in 5 years!

How Can You Help? Always looking for new fundraising ideas, volunteers, and leaders Want to build on/revive Shannon Dunn’s past Lungs on the Run success Contact us to get involved! Toni Kuhlman toni.kuhlman@yahoo.com Erin Hart harte2@ucmail.uc.edu

Thank you!  Dr. Barrett Dr. Morris Dr. Starnes UC Staff Members