UK Healthcare Text Analytics Research Network
The Rise of EHR Electronic health records Wide adaptation “the cornerstone of modern health care provision” primary use: routinely collected data secondary use: research and quality improvement Wide adaptation by 2018 fully digitalised EHRs in the UK Aim: largely paperless by 2020 Will contain info about patients’ histories, health and lifestyles Luchenski et al. 2013, JMIR
The Rise of EHR Clinician notes, letters are part of EHR L. Hirschman, CSHALS 2013
The Rise of EHR Estimates are that narrative contains 85% of the clinically actionable information in an EHR* How can we make this data accessible to researchers and analytics teams?
The Rise of Social Media Micro-blogging E.g. Twitter 6,000 posts per second 300 million active users Blogs and forums E.g. HealthUnlocked 200k registered members 2+ million monthly visitors 2+ million pieces of patient generated data wealth of patient experience data 6,000 posts on steroids (with multiple replies) 7,800 users interested in lupus Survey (US): >90% physicians use SM for personal use and 65% for professional use.
The Rise of Social Media symptoms, problems adverse events treatments life-style concepts sentiment psychological indicators quality of life
The Rise of Social Media
Making sense of healthcare text
Healtex UK healthcare text analytics research network Multi-disciplinary data/text analysts clinicians, epidemiologists semantic technologies privacy, legal and data protection
Healtex objectives Establish a collaborative and sustainable community Identify and understand barriers, challenges and unmet needs Identify key research challenges, and facilitate road- mapping Build the means to share data, methodologies and tools Incubate new research proposals
Membership Over 100 members from 20+ universities the Farr Institute of Health Informatics Research National clinical registries and databases UK Renal Registry, mental health (UK CRIS), etc. 10+ NHS trusts Industry HealthUnlocked; Linguamatics; Big White Wall; Open Connections; Toshiba Medical Visualisation Systems; Quirkos; AstraZeneca
Healtex launch event (Nov 2016)
Events We will be supporting workshops to understand the needs, challenges and barriers Get in touch if you have an idea Workshop at the Informatics for Health in April 2017 (Manchester) Hands-on events Datathons and hackathons Feasibility projects Funding available for small-scale projects 1st call in 2-3 months Research and innovation sandpits
Join the network www.healtex.org #healtex
Additional slides
The Rise of Social Media
Making sense of healthcare text
The Rise of Medical Literature “epidemiology[MeSH Subheading]” = ~1,700,00 papers "Clinical trial"[Publication Type] = ~800,000 papers "Case Reports"[Publication Type] = ~1,750,000 papers