Calvary Palliative and End of Life Care Research Institute Naomi McGowan National Project Manager, Palliative and End of Life Care

Background September 2017: Chair appointed Prof Liz Lobb, Calvary Health Care Kogarah Professor Palliative Care (Allied Health) Adjunct Professor, Faculty of Health, UTS Adjunct Professor, School of Medicine, UND Reports to National Director Hospitals 30th November 2017: Official launch Website, media release Assistance from Sam Kelly, Bethlehem (Marketing) Naomi McGowan (3 days/week from May 2018)

About the Institute Connects researchers in the specialist palliative care services at Calvary’s public hospitals Profiling academic and clinical research leaderships in palliative and end of life care Collaborating to strengthen the translation of research into practice - Calvary Health Care Kogarah - Calvary Public Hospital Bruce - Calvary Health Care Bethlehem - Calvary Mater Newcastle

Key Strategic Objectives Facilitating broad industry and stakeholder dissemination of palliative and end of life care research led by Calvary researchers or conducted in Calvary facilities Amplifying the influence and use of research being undertaken to key stakeholders and the wider health community Enhancing Calvary's profile specifically in the area of palliative and end of life care research

Research Focus Areas Symptom management Residential Aged Care pain, nausea, breathlessness, delirium Residential Aged Care needs rounds, triaging Progressive Neurological Disorders Motor Neurone Disease, Huntington’s Disease Communication family meetings, ambulance care plans, advance care planning, family conflict

Research Focus Areas cont. Planning service delivery, assessment tools Caregiving unmet needs, distress, grief, trauma, resilience and growth Culturally and Linguistically Diverse (CALD) barriers to access, pain management, information and resources in Chinese languages

Current KPIs Site engagement Mentoring Institute website Annual report Teleconferences with leads Site visits Mentoring Institute website www.pallcareresearch.org.au Annual report PEoLC Research Day 26th November, Calvary Kogarah

Challenges and Opportunities Sustainability funding, engagement of sites and clinicians, coordination/secretariat Research as a priority in addition to busy clinical load Translation of research (across Calvary) Profiling of researchers and facilities Building collaborations Sharing ideas & research agendas

Looking Ahead The development and implementation of an overarching operating model for the Institute Formalising membership, committee and governance structures Ongoing administration and marketing functions Developing a marketing plan and communications strategy