The Values that Direct IM4Q – Helping People Have the “Good Life” IM4Q Annual Statewide Training Presented by: Bill Krebs, Brian Habermehl, and Guy Caruso

Values Directing IM4Q This session will discuss the values that direct IM4Q – Everyday Lives Self Determination Valued Roles Being Person Centered IM4Q Programs and monitors need to understand and embrace values that help people interviewed have a “good life.” Presenters will share the importance of such values in their own lives and in the lives of people who are interviewed.  

IM4Q & Everyday Lives The purpose of Pennsylvania’s IM4Q is to collect information about, as well as to improve the quality of life of people with intellectual disabilities who are served and supported within the ODP system ODP’s vision is that everyone has the opportunity to live an everyday life IM4Q was developed as the key data collection method to measure if a person has an everyday life

What is an Everyday Life? Choice Control Quality Stability Safety Individuality Relationships Freedom Success Contributing to Community Accountability Mentoring Collaboration

How Does IM4Q Help Make an Everyday Life Possible? Asks people what they want/need Asks how lives can be made better Allow families to provide input Calls for a change when necessary Measures quality Provides job opportunities

IM4Q & Self Determination Another purpose of IM4Q is to support the various principles of the Self Determination Initiative of Pa IM4Q helps people with disabilities and their families determine the course of their lives by listening & recording what it is people want to improve their lives

Guiding Principles of Self Determination CHOICE RELATIONSHIP CONTRIBUTION & COMMUNITY ROLES & RESPONSIBILITIES CONTROL DREAMS DIGNITY & RESPECT FISCAL CONSERVATISM ATTITUDE

How Does IM4Q Help Make Self Determination Possible Provides an opportunity for people interviewed to speak their mind and to make decisions about what they would like in their life The survey instrument (EDE) asks questions geared toward the principles of self determination (e.g., Satisfaction; Dignity, Respect & Rights; Choice & Control; Relationships; Inclusion) Person interviewed decides if considerations go into his/her ISP (IM4Q & ISP Connection) for discussion & action

Good Garden Project – Brian’s Story

Valued Role Areas of Life: 1. Home & Neighborhood 2. Family & Friends 3. Work 4. Learning 5. Spiritual & Religious 6. Community Association 7. Sports & Fitness 8. Creative Expression

No Devalued Roles Non-human (pre-human, no longer human, sub-human (vegetable/object), other (alien) Menace, Object of Dread Waste Material, Garbage, Discard Object of Ridicule Object of Pity Burden of Charity Child – a. Eternal b. Once Again Sick/Diseased Organism Dying, or Already Dead

What are the Barriers? Continued isolation and exclusion Existence of segregated settings Denial of individual support needs & disability Misperceptions and stereotypes Commodification of needs Medicalization of needs Lack of valued social roles

Some Basic Assumptions for Person-Centered Approaches Everyone has contributions to make Everyone has gifts and capacities Everyone is unique Everyone needs supports Blessing Consulting Group 2006

Basic Elements of Person-Centered Processes Positive Profile of the Person Inclusion of Significant Others Capacity Focus Contribution & Citizenship Natural Communities Network of Support Realignment of Traditional Structures Blessing Consulting Group 2006

What Do Each of These Approaches Have in Common? The Five Essential Accomplishments Community Presence Choice Respect Competence Community Participation Developed by John O’Brien

SAFETY/SECURITY/PROTECTION A Sixth Accomplishment Compliments of Chris Liuzzo Rennselaer County ARC – Residential Director SAFETY/SECURITY/PROTECTION

MAJOR LIFE AREAS: Living Arrangements Faith/Religious Life Education Employment Participating in the Community Financial Independence Family & Making Friends Having Fun/Recreation/Leisure Sexuality and Self-esteem Blessing Consulting Group 2006 - Adapted

HALLMARKS OF PERSON-CENTERED PRACTICES The person’s activities, services and supports are based upon his or her dream, interests, preferences and strengths The person and people important to the person are included in lifestyle planning and have the opportunity to exercise control and make informed decisions The person has meaningful choices, with decisions based on his or her experiences The person uses, when possible, natural and community supports Blessing Consulting Group 2006

HALLMARKS OF PERSON-CENTERED PRACTICES Activities, supports and services foster skill to achieve personal relationships, community inclusion, dignity and respect The person’s opportunities and experiences are maximized and flexibility is enhanced within existing regulatory and funding constraints Planning is collaborative, recurring and involves an ongoing commitment to the person The person is satisfied with his or her activities, supports and services Blessing Consulting Group 2006

Questions/Discussion Let’s Talk About the Values of IM4Q