GDPR Data Collection and PII Team: Shannon Labout

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Presentation transcript:

GDPR Data Collection and PII Team: Shannon Labout Data Science Solutions LLC Andreas Schwalm CSL Behring Hannah Sharp Gilead Michelle Brooks Alnylam Megan Schmidt UCB Arlene Coleman Pfizer Ashwini Weber Amgen Lauren White PhUSE

What is the GDPR Data Collection and PII Team Working on? Recommendations for White Paper, including: What data can we collect under GDPR? What other recommendations can we make around the handling PII and sensitive data?

Work Accomplished to Date Created working definitions Gathering and documenting recommendations based on team experience Just completed a public / community survey regarding collection of Age / Birth Date

Survey Overview 10 Questions Survey closed 13 August Collection of Age vs Birth Date What components of Birth Date can be collected Differences between pediatric vs adult studies Survey closed 13 August 30 responders 11 named companies (most responders did not name their company)

Survey Data - example

Next Steps Team review of survey, including free text comments Summarize results to determine whether a recommendation can be supported Draft recommendations for inclusion in GDPR White Paper

Join our team! Lauren White lauren@phuse.eu