The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop  Catherine J. Evans,

Slides:



Advertisements
Similar presentations
Validation of the Wisconsin Brief Pain Questionnaire in a Multilingual South African Population Noko Mphahlele, MSc, Duncan Mitchell, PhD, Peter Kamerman,
Advertisements

Quality Improvement in Cancer Symptom Assessment and Control: The Provincial Palliative Care Integration Project (PPCIP) Julie E. Gilbert, MSc, PhD, Doris.
Symptoms in the Month Before Death for Stage 5 Chronic Kidney Disease Patients Managed Without Dialysis  Fliss E. Murtagh, PhD, MRCGP, MSc, Julia Addington-Hall,
Development of the APCA African Palliative Outcome Scale
Is Short-Term Palliative Care Cost-Effective in Multiple Sclerosis
A Systematic Review of End-of-Life Care Communication Skills Training for Generalist Palliative Care Providers: Research Quality and Reporting Guidance 
Advancing Palliative Care as a Human Right
Evaluation of a Web-Based Palliative Care Pain Management Module for Housestaff  Sydney Morss Dy, MD, MSc, Mark Hughes, MD, MA, Carlos Weiss, MD, MHS,
The Public Health Strategy for Palliative Care
Palliative Care in Norway: A National Public Health Model
Symptoms in the Month Before Death for Stage 5 Chronic Kidney Disease Patients Managed Without Dialysis  Fliss E. Murtagh, PhD, MRCGP, MSc, Julia Addington-Hall,
A Psychometric Evaluation of Measures of Spirituality Validated in Culturally Diverse Palliative Care Populations  Lucy Selman, BA, MPhil, PG Cert Pall.
Richard Harding, BSc, MSc, DipSW, PhD, Richard A
Patterns of Social, Psychological, and Spiritual Decline Toward the End of Life in Lung Cancer and Heart Failure  Scott A. Murray, MBChB, MD, FRCGP, FRCP,
Definition, Categorization, and Terminology of Episodic Breathlessness: Consensus by an International Delphi Survey  Steffen T. Simon, MD, MSc, Vera Weingärtner,
Managing the Symptoms of Neuropathic Pain: An Exploration of Patients' Experiences  S. José Closs, BSc, RGN, MPhil, PhD, Vicki Staples, BSc, MSc, Innes.
Ilora G. Finlay, FRCP, FRCGP  Journal of Pain and Symptom Management 
Edmonton, Canada: A Regional Model of Palliative Care Development
A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care  Emily S. Collins, BSc,
The Measurement of Spirituality in Palliative Care and the Content of Tools Validated Cross-Culturally: A Systematic Review  Lucy Selman, BA, MPhil, PG.
Effectiveness of Palliative Day Care in Improving Pain, Symptom Control, and Quality of Life  Danielle M Goodwin, RGN, MSc, Irene J Higginson, BM, BS,
Hospice and Palliative Care Development in Africa: A Multi-Method Review of Services and Experiences  David Clark, PhD, Michael Wright, PhD, Jennifer.
Hospice and Palliative Care Development in India: A Multimethod Review of Services and Experiences  Elizabeth McDermott, PhD, Lucy Selman, MPhil, Michael.
Risk Factors for Developing Prolonged Grief During Bereavement in Family Carers of Cancer Patients in Palliative Care: A Longitudinal Study  Kristina.
What Palliative Care-Related Problems Do Patients Experience at HIV Diagnosis? A Systematic Review of the Evidence  Victoria M. Simms, MSc, Irene J. Higginson,
What Influences Patients’ Decisions on Artificial Hydration at the End of Life? A Q- Methodology Study  Catherine Malia, MSc, Michael I. Bennett, MB, ChB,
Development of the APCA African Palliative Outcome Scale
“I Can Breathe Again!” Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived From Qualitative Interviews  Steffen.
Barbara Gomes, PhD, MSc, BSc, Maja de Brito, MSc, BSc, Vera P
Barbara Gomes, MSc, Richard Harding, PhD, Kathleen M
How to Measure the International Development of Palliative Care
Building a Palliative Care Program in Ethiopia: The Impact on HIV and AIDS Patients and Their Families  Medhanit Wube, MPH, RN, Carla Jansen Horne, MA,
Do Hospital-Based Palliative Teams Improve Care for Patients or Families at the End of Life?  Irene J Higginson, BMedSci, BM, BS, FFPHM, PhD, Ilora Finlay,
Understanding Palliative Care on the Heart Failure Care Team: An Innovative Research Methodology  Lorelei A. Lingard, PhD, Allan McDougall, MA, PhD, Valerie.
What Can We Learn About the Spiritual Needs of Palliative Care Patients From the Research Literature?  Mark Cobb, MA, Christopher Dowrick, MD, FRCGP,
A Systematic Review Examining the Literature on Attitudes of Patients with Advanced Cancer Toward Research  Anne M.H. Todd, BA (Hons), Barry J.A. Laird,
David Clark, PhD, Michael Wright, PhD 
Integrating Palliative Care into National Policies
The Carer Support Needs Assessment Tool (CSNAT) for Use in Palliative and End-of- life Care at Home: A Validation Study  Gail Ewing, BSc, PhD, RGN, Caroline.
Mapping Levels of Palliative Care Development: A Global View
Research Priorities in Health Economics And Funding for Palliative Care: Views of an International Think Tank  Richard Harding, BSc (Joint Hons), MSc,
A Comparison of Symptom Prevalence in Far Advanced Cancer, AIDS, Heart Disease, Chronic Obstructive Pulmonary Disease and Renal Disease  Joao Paulo Solano,
The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic.
Illness Perceptions, Adjustment to Illness, and Depression in a Palliative Care Population  Annabel Price, MBBS, BSc, MRCPsych, Laura Goodwin, BSc, MSc,
A Rapid Two-Stage Screening Protocol for Palliative Care in the Emergency Department: A Quality Improvement Initiative  Myra Glajchen, DSW, Robin Lawson,
Steven Z. Pantilat, MD, Kathleen M. Kerr, BA, J
The Need for Palliative Care in Ireland: A Population-Based Estimate of Palliative Care Using Routine Mortality Data, Inclusive of Nonmalignant Conditions 
Managing Symptoms in Patients with Advanced Lung Cancer During Radiotherapy: Results of a Psychoeducational Randomized Controlled Trial  Carmen W.H. Chan,
U.S. Hospice Benefits Journal of Pain and Symptom Management
Risk Factors for Common Mental Disorder in Caregiving and Bereavement
The Effectiveness of Acupressure for the Control and Management of Chemotherapy- Related Acute and Delayed Nausea: A Randomized Controlled Trial  Alexander.
Association Between Symptom Distress and Survival in Outpatients Seen in a Palliative Care Cancer Center  J. Lynn Palmer, PhD, Michael J. Fisch, MD, MPH 
Validation of a symptom measure suitable for use among palliative care patients in the community: CAMPAS-R  Gail Ewing, BSc, PhD, RGN, Chris Todd, BA,
A New Approach to Eliciting Patients' Preferences for Palliative Day Care: The Choice Experiment Method  Hannah-Rose Douglas, PhD, Charles E. Normand,
Systematic Review of the Primary Research on Minority Ethnic Groups and End-of-Life Care From the United Kingdom  Natalie Evans, BSc, MSc, Arantza Meñaca,
Clinical and Economic Impact of Palliative Care Consultation
The Bow Tie Model of 21st Century Palliative Care
Consensus Building in Palliative Care: A Europe-Wide Delphi Study on Common Understandings and Conceptual Differences  Saskia Jünger, Dr rer medic, Sheila.
Noko Mphahlele, MSc, Duncan Mitchell, PhD, Peter Kamerman, PhD 
A Cost Analysis of a Hospital-Based Palliative Care Outreach Program: Implications for Expanding Public Sector Palliative Care in South Africa  Charles.
Use of the Palliative Outcome Scale in Argentina: A Cross-Cultural Adaptation and Validation Study  Jorge H. Eisenchlas, MD, MSc, Richard Harding, BSc,
Screening for Depression in Advanced Disease: Psychometric Properties, Sensitivity, and Specificity of Two Items of the Palliative Care Outcome Scale.
Is Short-Term Palliative Care Cost-Effective in Multiple Sclerosis
Amy P. Abernethy, MD  Journal of Pain and Symptom Management 
Optimizing Decision Making and Resource Allocation in Palliative Care
Steffen T. Simon, MD, MSc, Irene J
Identification of Factors Associated With Fatigue in Advanced Cancer: A Subset Analysis of the European Palliative Care Research Collaborative Computerized.
Helping Patients with Advanced Cancer Live with Concerns About Eating: A Challenge for Palliative Care Professionals  Jane Hopkinson, PhD, RGN, Jessica.
Cancer Symptom Clusters: A Validation Study
Associations Between Physical Activity and Quality of Life in Cancer Patients Receiving Palliative Care: A Pilot Survey  Sonya S. Lowe, MD, MSc, Sharon.
Presentation transcript:

The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop  Catherine J. Evans, BSc (Hon), MSc, PhD, RN, Hamid Benalia, BSc, MA, Nancy J. Preston, BSc, PhD, RN, Gunn Grande, BA, MSc, MPhil, PhD, Marjolein Gysels, BA, MA, PhD, Vicky Short, MPhil LLB (Hons), Barbara A. Daveson, BA, PhD, BMUS (MUSTHY), Claudia Bausewein, MSc, MD, PhD, Chris Todd, BA, MA, PhD, Irene J. Higginson, BMBS, BMedSci, PhD, FFPHM, FRCP  Journal of Pain and Symptom Management  Volume 46, Issue 6, Pages 925-937 (December 2013) DOI: 10.1016/j.jpainsymman.2013.01.010 Copyright © 2013 U.S. Cancer Pain Relief Committee Terms and Conditions

Fig. 1 Flow diagram of the study design. Journal of Pain and Symptom Management 2013 46, 925-937DOI: (10.1016/j.jpainsymman.2013.01.010) Copyright © 2013 U.S. Cancer Pain Relief Committee Terms and Conditions

Fig. 2 Properties of the best primary outcome measures in evaluations of palliative and EOL care. Box and whisker plot of the interquartile ranges and medians of level of agreement for the 11 recommendations (box: 25th and 75th percentiles; whiskers: minimum and maximum). Journal of Pain and Symptom Management 2013 46, 925-937DOI: (10.1016/j.jpainsymman.2013.01.010) Copyright © 2013 U.S. Cancer Pain Relief Committee Terms and Conditions

Fig. 3 Enhancing the validity of proxy data in evaluations of palliative and EOL care. Box and whisker plot of the interquartile ranges and medians of level of agreement for the nine measurement recommendations (box: 25th and 75th percentiles; whiskers: minimum and maximum). Journal of Pain and Symptom Management 2013 46, 925-937DOI: (10.1016/j.jpainsymman.2013.01.010) Copyright © 2013 U.S. Cancer Pain Relief Committee Terms and Conditions

Fig. 4 Data collection time points in evaluations of palliative and EOL care. Box and whisker plot of the interquartile ranges and medians of level of agreement for the nine recommendations (box: 25th and 75th percentiles; whiskers: minimum and maximum). Journal of Pain and Symptom Management 2013 46, 925-937DOI: (10.1016/j.jpainsymman.2013.01.010) Copyright © 2013 U.S. Cancer Pain Relief Committee Terms and Conditions