Pre-appointment interventions to involve parents in their children's health care: a rapid review
Theory of Family-Centred Care Satisfaction with services Service resources and supports Parenting capabilities (self-management) Personal/Family well-being Child behaviour (development and health) Outcomes and benefits Control appraisals of practitioner help-giving Control appraisals of programme resources Control appraisals of general life events Parental Self-Efficacy Relational Active listening Compassion & respect Family strengths and capabilities Participatory Personalised care Flexible Family involvement, collaboration and partnership Help-giving interactions Dunst, C.,J., Trivette, C., M. and Hamby, W. (2007). Meta-Analysis of Family-Centred Helpgiving Practices Research. Mental Retardation and Develeopmental Disabilities Research Reviews. 12: 370-378
The (not-so) rapid review a systematic search strategy focussed on published literature within specific databases a single reviewer process with second reviewer consultations at key points (search strategy, list of included studies, and analysis) focus on a single outcome construct (here parent involvement) descriptive analysis
Population Intervention Comparison Outcomes Study design Parents of children aged 0-16 years old with a specified health condition Health professionals: Doctors, nurses, AHP’s Interventions focused on involving parents in their children’s health and care, delivered prior to, or during the initial consultation. Usual care No comparator Preparation for contact Contact Use of healthcare Health status and well-being Parent health behaviour Child’s treatment outcomes Outcomes related to health professionals Health system outcomes Randomised controlled trials (RCTs) Systematic reviews
Results
Continuum of parent involvement Consultation and instruction: Give information Give instructions and parents expected to follow them Involvement: Parents asked about their preferences Professional prompts parent answers Partnership and collaboration: Shared leadership Collaborative review and discussion Written materials shared decision making aids Symptom management Self-management Carman et al. (2013). Patient and family engagement: A framework for understanding the elements and developing interventions and policies. Health Affairs. 32(2) 223-231
A survey of pre- appointment materials used by children’s therapy teams in England
Samantha.Armitage@sch.nhs.uk @samarmitage