The Mastocytosis Society Survey on Mast Cell Disorders: Patient Experiences and Perceptions  Susan Jennings, PhD, Nancy Russell, DrPH, Blair Jennings,

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Presentation transcript:

The Mastocytosis Society Survey on Mast Cell Disorders: Patient Experiences and Perceptions  Susan Jennings, PhD, Nancy Russell, DrPH, Blair Jennings, BS, Valerie Slee, RN, BSN, Lisa Sterling, BS, Mariana Castells, MD, PhD, FAAAAI, Peter Valent, MD, Cem Akin, MD, PhD, FAAAAI  The Journal of Allergy and Clinical Immunology: In Practice  Volume 2, Issue 1, Pages 70-76 (January 2014) DOI: 10.1016/j.jaip.2013.09.004 Copyright © 2013 The Authors Terms and Conditions

Figure 1 Reported diagnoses of 420 survey respondents, reporting each diagnosis type. “Diagnosis not determined” also includes those who were “not sure.” The Journal of Allergy and Clinical Immunology: In Practice 2014 2, 70-76DOI: (10.1016/j.jaip.2013.09.004) Copyright © 2013 The Authors Terms and Conditions

Figure 2 The percentage of 366 respondents who selected or listed specific trigger types. Common write-in triggers were various foods (31.1%), cold (13.9%), food additives (9.3%), friction and/or pressure (8.7%), fatigue (6.8%), and chemicals (4.9%). Less common write-in triggers are provided in Table E6. The Journal of Allergy and Clinical Immunology: In Practice 2014 2, 70-76DOI: (10.1016/j.jaip.2013.09.004) Copyright © 2013 The Authors Terms and Conditions

Figure 3 The percentages that represent aspects of life with a MCD among 379 respondents selecting extreme, moderate, or a little effect regarding coping. The percentages are not displayed for those who selected “not at all” (4% to 5% did not answer these questions). *All numbers represent percentages. The Journal of Allergy and Clinical Immunology: In Practice 2014 2, 70-76DOI: (10.1016/j.jaip.2013.09.004) Copyright © 2013 The Authors Terms and Conditions