8th November 2018 David Innes, Chair Chronic Lymphocytic Leukaemia Association Join us today and together we will fight CLL 1
Join us today and together we will fight CLL Basic data on CLL in UK 4220 new cases each year 72 median age for treatment 29,300 patients (all patients diagnosed in last 10 years) Most important leukaemia affecting adults in UK Blood cancer is now 3rd biggest killer in UK Join us today and together we will fight CLL
Join us today and together we will fight CLL Make Blood Cancer Visible Sept 2018 Focus for next 12 months is to get policy makers to accept that blood cancer deserves the same treatment as the so-called “big 4” Met top team from NHSE this week Also working separately with Leukaemia Care on guidelines for patient diagnosis Join us today and together we will fight CLL
Join us today and together we will fight CLL
Services we offer to members Helpline Health Unlocked Info on web site Conferences Join us today and together we will fight CLL
Join us today and together we will fight CLL Recent achievements Ibrutinib! New trustees Surveys Join us today and together we will fight CLL
Join us today and together we will fight CLL Work in progress Website will be redeveloped Information booklet New look news bulletins by email Janssen patient voice initiative Join us today and together we will fight CLL
Join us today and together we will fight CLL Fundraising Thanks to all members who have raised money for us recently Ideas for future activities Sponsorship – e.g. London 10k run Coffee mornings Cake sales Etc etc Join us today and together we will fight CLL
“How did you hear about CLLSA?” Almost 300 replies (some multiple) – summer 2018 Biggest source – Internet 65% Clinic/consultant/nurse – low at 19% CLLSA leaflet – only 11% Action Focus on maximum exposure for CLLSA in search engines Work with clinics etc to get the CLLSA message across Join us today and together we will fight CLL
Join us today and together we will fight CLL Plans for next 12 months Increase membership from 2500 to 3000 Increase income to £100,000 - £40,000 from pharma, £60,000 from fundraising local and national, including legacies 6 conferences in 2019 Liverpool January Cambridge March Bournemouth May Newcastle July Nottingham September London November Change charity to CIO Join us today and together we will fight CLL