Controversies with Kalydeco: Newspaper coverage in Canada and the United States of the cystic fibrosis “wonder drug”  Christen Rachul, Maeghan Toews,

Slides:



Advertisements
Similar presentations
2015 Alzheimer's disease facts and figures Alzheimer's & Dementia: The Journal of the Alzheimer's Association Volume 11, Issue 3, Pages (March.
Advertisements

Use of the insulin pump in treat cystic fibrosis related diabetes Dana S. Hardin, Julie Rice, Mark Rice, Randall Rosenblatt Journal of Cystic Fibrosis.
Cheryl Cameron, Mark W. Lodes, William M. Gershan 
Treatment compliance in children and adults with Cystic Fibrosis
Megan W. France, Mary E. Dodd, John R. Govan, Catherine J. Doherty, A
P. Whitaker, N. Shaw, J. Gooi, C. Etherington, S. Conway, D. Peckham 
The immediate effect of musculoskeletal physiotherapy techniques and massage on pain and ease of breathing in adults with cystic fibrosis  Annemarie Lee,
An overview of international literature from cystic fibrosis registries: 1. Mortality and survival studies in cystic fibrosis  R. Buzzetti, D. Salvatore,
Cystic fibrosis research in allied health and nursing professions
R. Roberts, L. Speight, J. Lee, L. George, R. I. Ketchell, D. Lau, J
Abaigeal D. Jackson, Christopher H. Goss  Journal of Cystic Fibrosis 
How does heart rate recovery after sub-maximal exercise correlate with maximal exercise testing in children with CF?  Sarah P. Cohen, David M. Orenstein 
Avani C. Modi, Crystal S. Lim, Nami Yu, David Geller, Mary H
Megan R. Nelson, Craig R. Adamski, Audrey Tluczek 
Urinary incontinence in 9���16��year olds with cystic fibrosis compared to other respiratory conditions and a normal group  W.J. Browne, C.J. Wood, M.
Measures of body habitus are associated with lung function in adults with cystic fibrosis: A population-based study  Doug L. Forrester, Alan J. Knox,
Microbiological yield from induced sputum compared to oropharyngeal swab in young children with cystic fibrosis  Marco Zampoli, Komala Pillay, Henri Carrara,
Laura Viviani, Baroukh M. Assael, Eitan Kerem 
Comparison of two pancreatic enzyme products for exocrine insufficiency in patients with cystic fibrosis  C.J. Taylor, R. Thieroff-Ekerdt, S. Shiff, L.
Cirrhosis and other liver disease in cystic fibrosis
The ease of breathing test tracks clinical changes in cystic fibrosis
Controlled clinical trials in cystic fibrosis — are we doing better?
Adherence to nebulised therapies in adolescents with cystic fibrosis is best on week- days during school term-time  Rosemary Ball, Kevin W. Southern, Pamela.
Anju Anand, Elizabeth Tullis, Anne Stephenson, Preyanka Abhyankar 
D. Stevens, P.J. Oades, N. Armstrong, C.A. Williams 
Claire J. Tipping, Rebecca L. Scholes, Narelle S. Cox 
Cystic fibrosis mortality trend in Italy from 1970 to 2011
The Journal of Cystic Fibrosis: Sunny perspectives
Efficacy of high dose phylloquinone in correcting vitamin K deficiency in cystic fibrosis  Donna Drury, Vijay Laxmi Grey, Guylaine Ferland, Caren Gundberg,
Amyloidosis in cystic fibrosis: A case series
A.H. Gifford  Journal of Cystic Fibrosis 
Risk of asthma in heterozygous carriers for cystic fibrosis: A meta-analysis  Anne Orholm Nielsen, Sadaf Qayum, Pierre Nourdine Bouchelouche, Lars Christian.
Cystic fibrosis related diabetes in an extremely young patient
Inhalation solutions — Which ones may be mixed
Antonia V. Bennett, Donald L. Patrick, James F. Lymp, Todd C
Characterisation of mutations and genotype–phenotype correlation in cystic fibrosis: Experience from India  Shivaram S. Shastri, Madhulika Kabra, Sushil.
Association between practice patterns and body mass index percentile in infants and young children with cystic fibrosis  Raj Padman, Lloyd N. Werk, Gabriela.
Sophia L. Markantonis, Anna Katelari, Eleni Pappa, Stavros Doudounakis 
Correlation of sweat chloride and percent predicted FEV1 in cystic fibrosis patients treated with ivacaftor  Meredith C. Fidler, Jack Beusmans, Paul Panorchan,
E. Tschiedel, H. Grasemann, F. Ratjen  Journal of Cystic Fibrosis 
Colon Cancer in Cystic Fibrosis patients: Is this a growing problem?
Anastasios Lekkas, Khin M. Gyi, Margaret E. Hodson 
Narelle S. Cox, Jennifer Follett, Karen O. McKay 
Novel concepts in evaluating antimicrobial therapy for bacterial lung infections in patients with cystic fibrosis  Geraint B. Rogers, Lucas R. Hoffman,
Gender differences in treatment adherence among youth with cystic fibrosis: Development of a new questionnaire  Joän M. Patterson, Melanie Wall, Jerica.
Segregation of children with CF diagnosed via newborn screening and acquisition of Pseudomonas aeruginosa  Karen O. McKay, Peter J. Cooper, Peter P. van.
Disease disclosure in individuals with cystic fibrosis: Association with psychosocial and health outcomes  Adrienne P. Borschuk, Robin S. Everhart, Michelle.
Trends in pathogens colonising the respiratory tract of adult patients with cystic fibrosis, 1985–2005  F.A. Millar, N.J. Simmonds, M.E. Hodson  Journal.
A new method of sweat testing: the CF Quantum®sweat test
Kristoffer S. Berlin, Daniel A. Sass, W. Hobart Davies, Matthew D
Lung clearance index during hospital admission in school-age children with cystic fibrosis  Liam Welsh, Christopher Nesci, Haily Tran, Marisol Tomai,
Successful treatment of cepacia syndrome with a combination of intravenous cyclosporin, antibiotics and oral corticosteroids  Francis J. Gilchrist, A.
V. Thompson, N. Mayer-Hamblett, M. Kloster, D. Bilton, P.A. Flume 
H. White, A.M. Morton, S.P. Conway, D.G. Peckham 
J.E. Spahr, R.B. Love, M. Francois, K. Radford, K.C. Meyer 
James H. Hull, Rachel Garrod, Timothy B. Ho, Ronald K. Knight, John R
L. Uppaluri, S.J. England, T.F. Scanlin  Journal of Cystic Fibrosis 
V. Terlizzi, A. Tosco, R. Tomaiuolo, A. Sepe, N. Amato, A. Casale, C
D.F. Waterhouse, A.M. McLaughlin, C.G. Gallagher 
CFTR modulators and pregnancy: Our work has only just begun
‘Peeling paint’ dermatitis as a presenting sign of cystic fibrosis
L. Nshimyumukiza, A. Bois, P. Daigneault, L. Lands, A. -M. Laberge, D
Cheryl Cameron, Mark W. Lodes, William M. Gershan 
An unusual case of abdominal pain in a patient with cystic fibrosis
Lutz Goldbeck, Sven Zerrer, Tim G. Schmitz  Journal of Cystic Fibrosis 
Khin M. Gyi, Margaret E. Hodson, Magdi Y. Yacoub 
David Adeboyeku, Sandra Scott, Margaret E. Hodson 
Elisabeth P. Dellon, Margaret W. Leigh, James R. Yankaskas, Terry L
Anne K. Swisher, Kathryn Moffett, Linda Baer 
H. White, A.M. Morton, D.G. Peckham, S.P. Conway 
Presentation transcript:

Controversies with Kalydeco: Newspaper coverage in Canada and the United States of the cystic fibrosis “wonder drug”  Christen Rachul, Maeghan Toews, Timothy Caulfield  Journal of Cystic Fibrosis  Volume 15, Issue 5, Pages 624-629 (September 2016) DOI: 10.1016/j.jcf.2016.03.006 Copyright © 2016 The Authors Terms and Conditions

Fig. 1 Framing of news articles by country. Journal of Cystic Fibrosis 2016 15, 624-629DOI: (10.1016/j.jcf.2016.03.006) Copyright © 2016 The Authors Terms and Conditions

Fig. 2 Attribution of cost of Kalydeco to different actors. Journal of Cystic Fibrosis 2016 15, 624-629DOI: (10.1016/j.jcf.2016.03.006) Copyright © 2016 The Authors Terms and Conditions

Fig. 3 Responsibility to address funding concerns. Journal of Cystic Fibrosis 2016 15, 624-629DOI: (10.1016/j.jcf.2016.03.006) Copyright © 2016 The Authors Terms and Conditions