A Nursing Perspective on Improving Outcomes for Patients With Hemophilia

Program Goals

Introduction

Newly Diagnosed Hemophilia A in an Infant

Meeting Patients and Family Members “Where They Are At”

Comprehensive Care at Hemophilia Treatment Centers Multidisciplinary Care Team Members

Meeting Patients and Family Members “Where They Are At” (cont)

Source of Medical Care and Mortality

Prophylaxis and “On-Demand” Therapy Definitions

Meeting Patients and Family Members “Where They Are At” (cont)

Transitioning From Adolescence to Adulthood

Transition in the Setting of Hemophilia

Some “Red Flags” for Nonadherence to Factor Prophylaxis

Bleeds: Patient Education

Adherence to Prophylaxis Associated Factors

Meeting Patients and Family Members “Where They Are At” (cont)

Conclusions

Abbreviations

References

References (cont)

References (cont)