Immunoglobulin Database Update Dr Rob Hollingsworth Head of MDSAS

Thank you for your support of the database! 4/8/2019 1:11 AM Thank you for your support of the database! © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Database Services Recap 4/8/2019 1:11 AM Management of product shortages Support for Ig procurement and monitoring Safety and recall management Prescribing audit CQUINs and Dashboards Commissioning support Guidelines and efficacy/clinical review © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Data Requests Regional commissioning hubs NHS England 4/8/2019 1:11 AM Regional commissioning hubs NHS England National Services NHS Scotland Commercial Medicines Unit (CMU) Methods Pharma UKPIN etc. © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Database Status Update 4/8/2019 1:11 AM Database Status Update Almost 82,000 patients registered with 96,000 treatment episodes Multiple specialities and 140+ conditions 1,100,000 separate infusion entries 160 Trust’s submitting data (England, Scotland and Northern Ireland) Over 41 million grams of immunoglobulin recorded 1,100 Active database users © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Increasing Annual Usage of Ig 4/8/2019 1:11 AM © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Top 20 Trusts (Patients Treated) 4/8/2019 1:11 AM © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Top 20 Trusts (Usage) 4/8/2019 1:11 AM © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Annual Report 2018 www.igd.nhs.uk 4/8/2019 1:11 AM © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Immunoglobulin Database Updates Recent Releases Version 5.5 – 5.8 Pilot of Patient Home Therapy Recording System - Haemtrack Improved security allow user to unlock account Closed down inactive treatment episodes Infusion upload system improved – now allows 1200 records Auto submission of dashboards added Improved search system including search by batch number Improved reporting and migration to SSRS2017

Update Roadmap Update database to reflect new commissioning policies Rollout of patient home therapy monitoring – Haemtrack Dynamic upload forms – automatic product updates Upload from EPIC EPR Dashboard information automatic submission to NHS England Merge Panel Episode pilot process Reports updated to latest technology SSRS2017 Prior approval?

Database Support Calls Problem Type Number Account Creation 373 DB Data Change 294 Information 96 Reports Related 65 Procedural 64 Record Deletion 40 Staging Other 39 Locked Account 27 Username Reminder Password Reset 25 Configuration Change 18 Software Fault 15 Known Issue 14 Patient Removal Data Request 12 Website Update 10 Disable Account 7 System Suggestion 3 Browser Issue 2 Product Addition Grand Total 1187 Trusts can create their own user accounts

Account Management Functionality

Automated Uploads 40 Hospitals using the spreadsheet infusion upload In the last year: 40 Hospitals using the spreadsheet infusion upload 6 Hospitals currently using the follow-up upload 18 Hospitals currently using the Ig request upload

Future Possible Database Developments Electronic Referral Management and Image Capture ERIC - Electronic referral, triage and advice & guidance SiD App - Secure Image Data, captures and transfers images to NHS systems Information governance approved Use own device to capture images (images never stored on device) Successfully used in : Dermatology, Wound care, Burns, Plastics, Orthoplastics, Spinal Cord Injury, Vascular, etc.

1 2 3 Demo Spinal Demo 4/8/2019 1:12 AM Scan QR code Take picture Upload © 2015 Microsoft Corporation. All rights reserved. MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.

Haemtrack Home Diary System Future Database Developments Haemtrack Home Diary System 1.5 Million Entries by Patients Smartphone compatible Multiple language support Particular real-life experince of data capture from patients Available on multiple platforms, Apps, responsive website Image capture support

Conclusion The database and the work of Trusts to provide information to it, continues to be crucial to successfully manage the many challenges of Immunoglobulin therapy