HIV Patient ART Monitoring Meeting: International Conference Centre, Geneva 29-31 March 2004 Summary
Objectives of the meeting (1) Harmonize collection of three data sets Basic info at patient level Linkages with other systems Mechanisms for collection Reporting and feedback at various levels Data systems
Cross Cutting Issues Diverse participants--? Improved linkages Settings (infrastructure, volume, etc) Chronicity Data needs Data collection Timeliness Quality improvement Confidentiality/Security Data use/Data feedback
What have we achieved? Refinement of Patient care/treatment card Refinement of program monitoring information Better understanding of data capturing systems Explored linkages/cross cutting issues Identified next questions and steps forward
Recommendations Further refinement of patient data card and program monitoring information/registeries Linking treatment card with registries WHO recommendations on confidentiality Early warning to detect supply stock outs to rapidly respond How to “de-identify” data sets Selection of data capturing systems (short and long term) Dissemination of recommendations Feedback-two way
The Big Questions How will we learn from this? How will we coordinate? Data uses and rationing? What about long term goals? Sustainability indicators Financing sources Cost for treatment and commodities Staffing patterns Sector wide impact Capacity to scale up Impact indicators Long term survival Quality of life/productivity ARV resistance Incident infections