Using Data Disaggregation to Drive Health Equity

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Presentation transcript:

Using Data Disaggregation to Drive Health Equity Amina Ferati Senior Director of Government Relations & Policy, Asian & Pacific Islander American Health Forum January 24, 2019

About Us The Asian & Pacific Islander American Health Forum (APIAHF) influences policy, mobilizes communities, and strengthens programs and organizations to improve the health of Asian Americans, Native Hawaiians, and Pacific Islanders.

Why Should We Care? “Asians have the highest rate of insurance coverage of any listed race or ethnic group, at 92.5%.” Yes but… 86.8% insured for Burmese 12.2% uninsured for Bangladeshis “Asian and Pacific Islander men and women had lower rates of HPV-associated cancers than white men and women.” Yes but… 5X rate of cervical cancer for Vietnamese women compared to white women Source: Healthy People 2020; Asian Community Survey 2017. Source: Centers for Disease Control and Prevention. HPV is thought to be responsible for 90% of cervical and anal cancers. https://www.cdc.gov/cancer/hpv/statistics/race.htm Source: Miller BA et al., Racial/Ethnic Patterns of Cancer in the United States, 1988-1992, 1996, available at: https://seer.cancer.gov/archive/publications/ethnicity/

Section Title Description

The road to data equity 2016-2018 Revise OMB? 2015 NHANES AA Oversample 2010 Affordable Care Act 2014 NHIS NHPI Survey 2002 IOM Unequal Treatment Report 1997 OMB Revised Standards 2000 CLAS Standards 1986 Office of Minority Health

Federal Data Collection Standards

What could have been National Content Test Recommendations that OMB declined to adopt Combine race and ethnicity question New MENA (Middle East and Northern Africa Category) Checkboxes for subgroups for all races

Hope for 2019 and beyond Census 2015 Certified Electronic Health Record standards CDC Race & Ethnicity codes for 900 categories International codes for spoken/written language Ability to document sexual orientation & gender identity Required in CMS Medicare Quality Payment Program (MACRA) Health Equity & Accountability Act Cross-racial Work

Amina Ferati aferati@apiahf. org (202) 466-3550 Follow Us Online: www Amina Ferati aferati@apiahf.org (202) 466-3550 Follow Us Online: www.apiahf.org www.facebook.com/apiahf www.twitter.com/apiahf www.twitter.com/APIAHFpolicy http://www.youtube.com/APIAHF