Patient team members and stories 19th March 2008 Patient team members and stories Presenter: Jonathon Gray & Peggy Edwards Patient team members and stories

Planning the Interviews Patient Story Full narrative Maybe captured as a written account, or recorded interviews. Best to consider all potential uses and prepare accordingly Learning Purpose: To improve care How: Generating dialogue within teams; identifying needs; creating improvements, feedback outcomes (from Discovery) Campaign: Learning Sessions, How to Guides, Intranet dialogue. 1 Story - 4 Applications Collecting stories for the 1000 Lives Campaign Education Purpose: To see the patient as equal to the treatment; enabling a focus on the patient and not just the outcomes. How: to follow Campaign: Learning Session, How to Guides, Intranet dialogue Media Purpose: To validate the Campaign; Change a public mindset; Endorse good work and draw attention to flaws in the system How: Features in press/tv/web Campaign: Press Releases, Case Studies, Feature articles Inspire Purpose: To provide motivational reminders to frontline staff of ‘Why they do,what they do’ How: Distribute for use on Trust intranets, newsletters and in team meetings and conferences Campaign: Newsletters, E-bulletins, intranet/websites. Planning the Interviews Finding the stories Framing the questions Holding the interview Storage and retrieval Campaign Connectors Content areas Hearts and minds Healthcare improvement Local feedback Technicalities Written, audio, video Editing Photography Determining Uses Patient team members and stories

Why Patient stories Patient team members and stories To find out about patient experiences of their local health service. To inspire staff and teach future doctors and nurses. To learn what can be improved and how it’s been done. To help spread the Campaign’s message and achievements. Patient team members and stories

How do we collect the stories? To use a questionnaire to help patients to tell us their story in their own words. When a story collected via a questionnaire is particularly relevant to the Campaign’s work we hope to follow up with a filmed interview. Patient team members and stories

The questionnaire: Describe what happened. What was the main good thing about your experience? What was the main bad thing about your experience? What would have been the one thing that would have made a difference? What would be the one message you would tell your Local Health Service after your experience? Patient team members and stories

The consent form Patient team members and stories Patients’ Stories Consent Form (Please fill with black ink using BLOCK CAPITAL letters and return to: 1000 Lives Campaign Team, 14 Cathedral Road, Cardiff CF11 9LJ 1000livescampaign@wch.wales.nhs.uk) I ………………………………………………………. have read and understood the information sheet detailing how the stories will be used and shared. Anything you tell us will be treated anonymously – your name will not be passed on to anyone else. There is no obligation on you to take part in this process. Name (print characters please)…………………………………………………………………………… Signed…………………………………………………………………………………………………………………… Date………………………………………………………………………………………………………………………. Contact number ………………………………………………………………………………………………….. Email address ………………………………………………………………………………………………………. Patient team members and stories

The filmed interviews Patient team members and stories Only stories with direct involvement with areas covered by the 1000 Lives Campaign will be considered for filming. We will contact the story-teller to ask permission to film them telling their stories. The patient will be filmed telling their stories in their own words. They will be filmed in a place convenient to the patient by a professional film crew. No one involved in the patient’s experience will be involved in the interview. They will be used during local, national and international events. A new consent form will be required. Patient team members and stories