Patient Affairs Committee Hello, my name is _____________________, with the Patient Affairs Committee. I am here today to provide an update regarding Committee initiatives. Spring 2019

Committee Projects Improving the OPTN/UNOS Committee Structure through Enhanced Communication and Engagement If you recall from the last regional meeting cycle, the PAC and TCC piloted a modified committee structure with the intent of testing whether restructuring a committee would achieve specific goals set forth in the original concept paper. (can provide more detail if necessary)

Committee Projects Piloted July – December 2018 Proceed/extend proof of concept with the PAC only No immediate changes No end date Explore areas in which increased engagement was noticed: P&DA Reps to the Board Possible increased understanding of complex proposals due to existing PAC processes All but 6 members opted to continue The Executive Committee considered input from participant surveys, qualitative feedback from the online collaboration tool Basecamp, and discussions over various Committee meetings regarding whether the proof of concept was successful, and whether it should continue. The Executive Committee determined that the proof of concept had achieved success in terms of strengthening the connection between patient or donor family members across committees, and between the PAC and those members of the Board. Participants also self-reported increased understanding of and comfort with complex policy topics and content, based on processes the PAC currently utilizes, such as monthly education and small group public comment review. Therefore, the Executive Committee determined the proof of concept should be extended with PAC only-there was limited utility and success with TCC. They will no longer sponsor the proof of concept, but rather, the initiative is rolled into one of the UNOS Policy and Community Relations Department goals. They did not specify an end date, and they encouraged the group to further explore areas in which increased engagement was noticed. As December 2018 was communicated to members as the conclusion of the proof of concept, members were invited to continue. All but 6 members chose to do so. (this may change, waiting to hear back from 3)

Questions? Darnell Waun, MSN, RN Committee Chair waund1101@gmail.com Kimberly Uccellini, MS, MPH Transplant Community Administrator Kimberly.Uccellini@unos.org