Congenital Heart Disease Network – South Wales and South West Network Website 6th December 2016

Aims of Website Primary point of access for information for patients, clinicians and families affected by CHD in SWSW region A resource that clinicians will refer to / use to support conversations with patients Standardised design / brand to provide assurance over single pathway / consistency of care Synergy with other websites / future developments (e.g. apps) so that finding information is intuitive / logical Simple to navigate – 3 clicks to key information Content and function is driven by what users want and can be accessed by mobile as well as desktop Start with the principle of doing a limited number of things well, but without prejudicing development of the site to achieve longer term goals

Access Routes

User Considerations User Reason for access Key Requirements Content types Patients and families:   Understand care / pathway Assurance / support Specific concern / clinical question Patient education / engagement events Single point to access all info One message, regardless of location No more than 3 clicks Patient-friendly information Mobile access / app for key documents Pathway overview Patient information sheets Condition specific advice Hospital details Links to support groups Quality / outcome measures Key events / news FAQs Clinicians involved with CHD care (directly – specialists, and indirectly – e.g. GPs): Clinical advice / information Aiding discussion with patients Updates on network, research, M&Ms etc. Key publications / blog updates Education and training opportunities Intuitive – direct access to protocols etc. Can access easily from clinic (firewall) Possibly access to secure area ?notification – e.g. for new publications Clinical protocols Minutes Publications Updates / news / events Patient Support Groups: Update on key events in network Linking patients to their groups Provides an overview of their group Links to their website Summary of each group

User Reason for access Key Requirements Content types Patients and families:   Understand care / pathway Assurance / support Specific concern / clinical question Patient education / engagement events Single point to access all info One message, regardless of location No more than 3 clicks Patient-friendly information Mobile access / app for key documents Patient journey overview Patient information sheets Condition specific advice Hospital details Links to support groups Quality / outcome measures Key events / news FAQs Patient Support Groups: Update on key events in network Linking patients to their groups Provides an overview of their group Links to their website Summary of each group

Work shop What do the key users want / what will make them access the site? What content is required? What good examples do we want to follow? How do we get more patient views?