AUCD T.A. Meeting Bethesda, MD May/June 2007

Outcome Measures Over a 30 Year Span

Carl F. Calkins University of Missouri Kansas City Carl F. Calkins University of Missouri Kansas City Institute for Human Development, UCEDD

1. Community Imperative Closed St. Louis UAF Transferred UAF from Columbia to Kansas City MPC - Partnership

2. Leveraging Resources Core ratio to extramural dollars University dollars and resources

3. Quality of Life Where person with DD and their families are better off because of work of UCE.

4. Growth and Development Defined changes in growth and development. Movement to least restrictive alternatives.

5. Support of Advocacy Function People First Training for Advocates Individual with DD and family members

6. Number of Trainees Number of leaders trained Reports on quality of training experience Numbers by discipline

7. Publications Impact on field of DD Recognition of ADD

8. Partnerships Number with DD network Key stakeholders

9. Inclusion Contribution to field related to inclusion At risk populations

10. Effects on Individuals/ Families/ Systems Project: Sharing our Strengths FUNCTIONS Individuals   FAMILIES SYSTEMS CHANGE A CSS IPT ID AR Capacity Personnel Resource Independence Productivity Full Inclusion Competency Well Being Empowerment Building Development Leveraging X 25 Individuals with disabilities will receive support and mentorship to increase advocacy skills, knowledge of disability resources and self-determination skills. 25 Individuals with disabilities will have the resources and planning assistance in place to maximize their education and employment opportunities in the future. 25 Individuals with disabilities will receive resources and support based on values of empowerment and full inclusion in education, homes and employment in the community. 125 New parents learn quickly from experienced parent mentors how to navigate the disability services and education systems. 125 Families receive support and information provided by SOS and the matched parent mentor to improve the ability of a family to plan for changing needs across the lifespan. 125 Families will have the information and support they need to plan for the future, advocate, and instill self-determination skills in their child. Partnerships will support families in transitioning their children out of institutions and increase the capacity of Latino-serving agencies to serve Spanish-speaking families. 15 Professionals will be matched with professionals from other disciplines to increase their capacity to address disability issues from multiple perspectives. Department of Mental Health- Division of MR/DD $20,000 Mo Planning Council on DD $130,000 A = Administration CSS = Community Services and Supports IPT = Interdisciplinary Preservice Training ID = Information Dissemination AR = Applied Research

11. Shift to Universal Accessibility and Larger Issues of Full Inclusion Diversity / Disability Social Justice Partnership for Effective Social Change

Supportive Functions for Outcome Measures UAP Program Criteria / Site Review PAR – DD Network Technical Assistance as tool for Enhancement

Trends that Call for Outcomes in Field Shift from regional ADD Network to Central office Shift from service to services and supports ~ paradigm shift ADD status in U.S. Department of Health and Human Services & Administration for Children and Families

Move us forward We have all been working on this for a long time!

Annual Report Template Project 1 page to great detail on projects Core Functions

Individual Program Outcomes One Example of Individual Program Outcomes Project Profile Outline Core Functions Program Need and Historical Context Consumer & Community Involvement Significant Project Activities and Outcomes Institute Role Products Impact Systems Change Personnel Leveraging

Vision con Esperanza (Visions with Hope) 360° Implementation IHD Priority Area: Individual Advocacy and Family Supports Description: The purpose of this demonstration project is to enhance the capacity of an existing community based one-stop center for Latino families with children with developmental disabilities in Northeast Kansas City to provide family-centered and family-directed supports that preserve, strengthen, and maintain the family. Project Contact: Michelle Reynolds Annual Funding: $250,000 Funding Source: Administration on Developmental Project Period: 07/02-06/07 Disabilities - Project of National Significance Core Functions Applied Research: IHD faculty are researching needs in the Latino community and identifying potential partners. Community Services and Supports: Visions with Hope sponsors a Latino Family Support Group that provides peer support between Latino families with children with disabilities. Program Need and Historical Context Kansas City is home to the oldest Latino-settled community in the Midwest. The needs of Latino families of children with disabilities are not being met; there are barriers to the access of supports and services, disability service systems have not addressed the unique barriers of Latino families accessing services, and Latino organizations and service systems need to collaborate to provide services and supports that are family-centered and family-directed. Consumer and Community Involvement  The monthly family support group serves as the advisory board to the implementation of materials for the center. This chapter is made up of Latino families of children with developmental disabilities.  Parents of Latino children with developmental disabilities have assisted the IHD with training for professionals on cultural competency.  Parents have assisted with the development of products for the MODDRC, such as Fast Facts and SOS training in Spanish.

~ continued ~ Significant Project Activities and Outcomes ▪ Served over 90 Latino families who have children with developmental disabilities. ▪ Formed a monthly Latino Parent Support group where 38 families have attended at least 2 meetings in FY, 2006. ▪ In FY06, established support groups for Latino Youth with Disabilities, Parents with Autism and a Father Support Group. ▪ Enhanced the capacity of Sharing Our Strengths: Missouri’s Parent-to-Parent Network to provide training and peer support matches for Spanish speaking families. ▪ Hosts an AmeriCorps Member through the Community Support Navigator program. Institute’s Role IHD staff wrote the original proposal. IHD staff oversees all activities of the project. IHD staff provides technical assistance to Mattie Rhodes Center. Products ▪ A comprehensive family planning tool has been developed. ▪ Training curriculum to build cultural competency of service system staff and also administrators. ▪ Provided disability specific training to Mattie Rhodes staff. ▪ Analyzed the barriers and laws that Latino families may encounter when accessing services. ▪ Semi-annual and Annual reports submitted to ADD. ▪ Center brochure and Visions with Hope Website ▪ Spanish Fast Facts ▪ SOS Mentor Training Curriculum and supplemental products Impact Systems Change: The system will be better equipped to address the barriers and the issues of Latino families. Personnel: Staff will be better prepared to work with Latino families. Leveraging: Collaborators include Mattie Rhodes Center, Department of Mental Health Division of MR/DD, and Missouri Planning Council on DD. Mattie Rhodes received Supplemental funding received from Jackson County Board of Services and Down Syndrome Guild.

AmeriCorps Community Support Navigator IHD Priority Area: Individual Advocacy and Family Supports Description: The AmeriCorps members main role is to provide “mentoring” to individuals with disabilities and their families. Examples of mentoring activities include disseminating information about services and support, providing one-on-one training around self-determination, and also creating parent support groups. Project Contact: Michelle Reynolds Annual Funding: $159,296 Funding Source: Missouri Planning Council, UMKC-IHD, Project Period: 09/06-08/07 Missouri Community Service Commission Core Functions Applied Research: The Institute evaluates effectiveness of mentoring services through a direct service form, monthly member self-evaluation, monthly supervision feedback, and responses from individuals mentored by AmeriCorps Community Support Navigators. Community Services and Supports: AmeriCorps Community Support Navigators work within nine different communities in Missouri and provide mentoring to individuals with developmental disabilities and their families. AmeriCorps Community Support Navigators serve in Columbia, Kansas City, Camdenton, Fayette, St. Louis, and Jefferson City communities. As Community Support Navigators, AmeriCorps Members they provide peer mentoring support to individuals with developmental disabilities and their families to access and navigate needed resources, support access to existing generic community programs, and support the development of self-advocacy and leadership opportunities. Information Dissemination: AmeriCorps Community Support Navigators disseminate information & resources to individuals and families that they mentor within their community. Interdisciplinary Personnel Preparation: AmeriCorps Community Support Navigators receive 120 hours of training from the Institute and 6o hours of training from their community host sites.

~ continued ~ Program Need and Historical Context People with developmental disabilities and their families need access to information and peer support to assist them to make informed decisions regarding the services and supports available in their community. It is challenging for individuals to understand and navigate the maze of services and resources and to make choices that meet their unique support needs. Access to information resources has consistently been identified as a leading need of consumers and their families. In fact, in 2003 the Missouri Division of Mental Retardation and Developmental Disabilities (MRDD) initiated a system wide strategic planning initiative to design a system to meet the needs of people with developmental disabilities now and in the future. The results of this planning initiative were 62 recommendations produced by eight consumer–specific work groups. The top three “system-wide” issues identified were: Improve access to service through collaboration Increase Consumer Choice and Control; and Enhance competence and information. Each of these issues speaks to the need to provide information that is easy to understand and access, information that enhances choice and control of services, and information and supports that improves access to services through enhanced community collaborations. AmeriCorps members will work to address these information needs in communities across the state. Consumer and Community Involvement The AmeriCorps members connect with each individual that they mentor on what they want to pursue for their own lives. The AmeriCorps member then assists the individual to interface with their community through volunteer opportunities, community resources to become part of their chosen community. Significant Project Activities and Outcomes The goal of the project is to provide information and support to 300 individuals with developmental disabilities and / or their families. Institute’s Role The Institute provides administrative support to AmeriCorps host sites, and AmeriCorps Community Support Navigators. Collaborate with the Missouri Community Service Commission to ensure that AmeriCorps paperwork meets the federal standards. Maintain information about the direct service that each AmeriCorps Community Support Navigators through their paperwork, to report to the Missouri Community Service Commission office. Products The project will provide mentoring services to 300 individual and / or families with developmental disabilities in Missouri.

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