IOF INTERNATIONAL OSTEOPOROSIS FOUNDATION COMMUNICATIONS PLAN AND POLICY STRATEGIES IOF INTERNATIONAL OSTEOPOROSIS FOUNDATION Judy Stenmark, CEO

EU Policy 2013 Three major publications SCOPE: a scorecard for osteoporosis in Europe - Kanis et al. - Archives of Osteoporosis Osteoporosis in the European Union: medical management, epidemiology and economic burden (EU27) - Hernlund E et al. - Archives of Osteoporosis (A report prepared in collaboration with IOF and EFPIA) Osteoporosis in the European Union: a compendium of country-specific reports - Svedbom A et al. - Archives of Osteoporosis (A report prepared in collaboration with IOF and EFPIA) EU Osteoporosis Consultation Panel - November 2013

SCOPE & eu27: Media launch Rome, April 17 1st day of ESCEO13-IOF meeting Key messages focused on EU27 key findings & SCOPE highlights Moderated by Professor Jean-Yves Reginster Presentations by Profs. Juliet Compston, John A. Kanis, Maria Luisa Brandi, René Rizzoli Press kit available in both English and Italian IOF issued a press release through EurekAlert and PR Newswire Local agency targeted Italian media EU Osteoporosis Consultation Panel - November 2013

SCOPE & eu27: Media coverage April 16 “Osteoporosis costs EU countries €37 billion every year”: 2,567 page views April 17 “New scorecard shows inequalities in osteoporosis care in the European Union”: 1,341 page views April 17 “New data reveal increasing burden of osteoporosis in Europe” released via PR Newswire Europe-wide in 5 languages October 15 “In Europe 3.5 million new fragility fractures occur annually, shows data published today”: 1,073 page views November 11 “22 million women aged over 50 are affected by osteoporosis in the European Union”: 1,535 page views EU Osteoporosis Consultation Panel - November 2013

SCOPE & eu27: Press Clippings EU Osteoporosis Consultation Panel - November 2013

SCOPE & eu27: dissemination Extending the reach Open access articles Website visibility and downloads Social media supported all outreach BoneBlast newsletter (17,000+ contacts) articles: March & April – pre-announcements EU27 and SCOPE May 2013 – link to download SCOPE scorecard and key findings of SCOPE and EU27 September – link to download SCOPE paper November – link to download EU27, Compendium, SCOPE EU Osteoporosis Consultation Panel - November 2013

SCOPE: scorecard EU Osteoporosis Consultation Panel - November 2013

SCOPE & eu27: USB bone key Content EU27 report summary SCOPE scorecard CtF position paper European guidance for postmenopausal women paper and supporting slide kit EU Osteoporosis Consultation Panel - November 2013

SCOPE & eu 27: dissemination Engaging key stakeholders Material emailed to all EU Panel members CNS newsletter promotion and links  Sent to 90 CNS in the 27 EU countries template press release provided Call to action: use country-specific data to lobby governments IOF offered to provide a letter of support for national level efforts Promotion during key meetings and conferences EU Osteoporosis Consultation Panel - November 2013

ESCEo13-IOF meEting April 17-20 Booth: promotional materials distributed including laminated scorecard and USB bone key Friday, April 19: IOF-ESCEO co-hosted a symposium “European guidance for the diagnosis, assessment and treatment of osteoporosis” EU Osteoporosis Consultation Panel - November 2013

IOF Worldwide Conference of Osteoporosis Patient Societies May 31 - 2 June May 31 Women Leaders opened the meeting: Finnish journalist; UK Baroness from the House of Lords; Finnish MEP. All supporting the theme of Strong Women for Strong Bones June 1 Policy Roundtable: leading policy experts presented on EU health policy issues; working with governments; advocacy; osteoporosis on health agendas June 2 Plenary: SCOPE & European Guidance for Postmenopausal Women – Prof. René Rizzoli Distribution of promotional material EU Osteoporosis Consultation Panel - November 2013

EP Osteoporosis Interest Group October 18 Mary Honeyball (MEP, UK), Co-Chair, Interest Group: Coordinated distribution of a postcard containing report messages to all MEPs e-Version of postcard also sent Reached over 700 policy makers EU Osteoporosis Consultation Panel - November 2013

EP Osteoporosis Interest Group November 27 Reception will: Highlight recent publications Share tools Promote advocacy and policy strategies Establish relationships for future follow up Attract new membership to the Interest Group Mary Honeyball’s office coordinated logistics and invitations EU Osteoporosis Consultation Panel - November 2013

Policy opportunities 2014 EU27 policy reports and scorecard communications campaign The communications campaign will chiefly inform governments, health practitioners and policy makers, ultimately intending to guide the latter’s decision making and influence the priority accorded to fracture prevention by health authorities Working with CNS Creation of national media kits Regional events / panels: north, south, east, west Europe EU Osteoporosis Consultation Panel - November 2013

Thank you for YOUR COMMITMENT to the IOF vision EU Osteoporosis Consultation Panel - November 2013