Exceptional Lives A free disability information platform for families, caregivers, and professionals Julie McKinney Director of Product Content ma.exceptionallives.org
The Problem: Parents of children with disabilities often don’t know about the services and benefits available to help them. They don’t know whether their child qualifies or how to apply. Current resources are too complicated, and there is too much to sift through. Families are tired, stressed and emotional. They need it to be EASY!
Our Goal: Help families connect to services Our Motto: We’re here to make it easier.
Here’s what we have: Information and RD
Personalized “How-To” Guides Features: Personalized information, based on answers to a few questions. Step-by-step instructions explain how to navigate each process Accessible 24/7 on computer, tablet or mobile phone Easy to read and action-oriented Providers or counselors can print out relevant information for families Guide drop-down menu Start to talk about features
Making it Easy: Health Literacy & Tech Solutions Plain language and design Interactive software limits information to what’s relevant Small chunks of “need to know” facts and action steps Help with new terminology and web navigation Tested with intended audience More features
Address self advocacy and emotions More features
Personalizing and filtering the information EI services Short term and transition Special education
Examples:
Note checklist and other features if you sign in
Can print out checklist or whole Guide to give to families
Intercom: if you have a question
Click to get more information
Searchable Resource Directory Search by zip code and 50+ filters Visual mapping, directions, printing capabilities Descriptions for each entry written in plain language Constantly reviewed by ELI data specialists to ensure accuracy Available in Spanish
Search Options Select your category and the appropriate results will appear in the next column. When you hover over a result, the location point in the map will tell you the address and show where it is located. 50+ filters to choose from – types of therapy (i.e., ABA, speech), medical and clinical services, education and employment, adult programs and services, parent and caregiver support, legal, social and recreational activities Can also search by providers that accept Medicaid
Sample search: Developmental Pediatricians + Medicaid
Expert Helpline Free support through: Text Email Chat Phone All questions get a response within one business day Contact us at 844-354-1212
How can we help you share the Exceptional Lives resources with families? Send flyers Present to parent groups Send a shortcut button to put on your website Train staff to use our resources and show to families
Thank you for letting us present! Parent Testimonials Thank you for letting us present! Julie.mckinney@exceptionallives.org 1-844-1212 This one is better!