A New Approach: Making 2019 A Muscle Walk Knockout Corporate Chair and Honorees November 26, 2018

Muscle Walk Team Scott Van Zile Program Support Coordinator Milwaukee, WI Brittany Fornengo National Director Minneapolis, MN Lisa Lodde NVP Community Engagement Milwaukee, WI

Success From Your Peers Derek Harrigan Development Specialist Cedar Rapids, IA Sarah Coleman Executive Director Chicago, IL

Housekeeping All phone lines are muted If you have a question please use the chat box and we will try to answer questions as we go but will also give you the chance to ask at the end. If we don’t have time to get all of your questions answered, we will send out a FAQ sheet following the WebEx. This WebEx is being recorded and will be posted to the MW Resource Center by the end of the week.

What is your favorite part of Muscle Walk or what is one thing you are looking forward to the most if this will be your first Muscle Walk? Submit your answers in the chat feature.

2018 and 2019 Goals Projecting to finish 2018 at $6 Million 2019 business plans are to raise an additional $650,000 YOY

The Power of Our Families Only 3% of MDA families participate in the MW program MDA has over 100,000 registered patients The average newly diagnosed family raises $3,600 25% of MDA families are newly diagnosed each year The average MDA family (not newly diagnosed) raises $1,600 80% of money raised is done by the top 15 teams The average Muscle Walk donation is $74…ten donors = $740

MDA Family Contact Has To Be #1 Work as one MDA Team in your District office! Work with the CCS to make sure that they are DISTRIBUTING Muscle Walk information and TALKING about the Muscle Walk at the Care Centers and anywhere else they are coming in contact with MDA families. Discuss updates and status of your Muscle Walk and MDA family component at your District’s weekly team meeting After a Care Center day, touch base with the CCS for to see what comments and referrals they are able to give you - especially newly diagnosed Use the MDAsecure lists that are sent to you, ED and RD as soon as you receive them – make calls to MDA families each and every day. Sometimes you will have to call in the evening or on the weekends to reach an MDA family

Important MDAsecure Family Lists

2019 Muscle Walk Priorities Make Muscle Walk a PRIORITY For the event lead and for the entire District office Muscle Walk is a year-round campaign Engage and invite more families to join the biggest MDA reunion MW is MDA’s signature program for MDA families – let’s make it great! We can’t be afraid to ask our families to raise money for MDA Grow support by engaging more companies through sponsorship and teams Think outside of the box and incorporate the new things you will hear on today’s WebEx For the MW program to grow we need to embrace new approaches and make them work

Knocking Out Your Muscle Walk Recruiting A Corporate Chair

Corporate Chair – Why? Why have a corporate chair? Top executive New aspect/direction More people involved More money for MDA Top executive Someone with a wide network Lots of contacts and vendors Willing to ask for support on behalf of the MDA Muscle Walk Someone who sets a goal of raising 20% of your overall Muscle Walk income

Corporate Chair- How? Company sponsorship Internal teams/fundraising Creating an Executive Committee A group of 5-7 people that the Corporate Chair identifies within their network to assist in raising the 20% of overall income. (new money) Hosting a Corporate Breakfast Morning meeting inviting network to learn more about MDA and asking for their support. 25-30 community leaders in attendance (depending on market) How does this breakfast get paid for??? Host at Corporate Chair’s company Get food/location donated

Where do you find your Corporate Chair? Current sponsors or past sponsors Family connections to high level executives at a company Top company teams involved with Muscle Walk Use LinkedIn to see who our families and current sponsors are connected to Discuss during your weekly District Team meetings Make sure to include your District Care Team

Corporate Chair Resources

Medical Honoree The face of the event representing the medical community. This can be a neuromuscular doctor, physical therapist, dentist, eye doctor, etc. Sets goal of raising $10,000/$5,000 ($10,000 for events with 500+ participants and $5,000 for under 500 participants) Company sponsorship Company teams/fundraising Getting referral facilities involved by sponsoring/creating teams Patient mailing Social media

Where do you find your Medical Honoree? MDA Care Centers Ask your families to nominate someone who should be recognized Ask the leaders of your MDA Care Centers who should be honored Is there someone from a DME vendor, etc. that could be asked Medical staff at Summer Camp

Medical Honoree Resources

Youth/Adult Honoree Patient to honor at the event and share their story throughout the Muscle Walk season Commits to raising funds and sharing their story by Starting a team with a fundraising goal of $5,000 for events with 500+ participants and $2,500 for under 500 participants. Shares story to be used in email, day of event and put on event website Go to when looking for stories to highlight during Muscle Walk season Staff gives extra support to ensure goal is met and family is recognized properly

Where do you find your honorees? Top Muscle Walk teams Send an email asking for people to submit recommendations to be the honoree Current participants who go above and beyond Brainstorm at your weekly District office Team meeting Summer Camp

Resources for Adult/Youth Honoree

Resources available on the MW Resource Center now! Corporate Chair Description of roles Timeline Sample ask for Executive Committee members Medical Honoree Description of role Revenue stream breakdown Adult/Youth Honoree Sample timeline

Next Steps Make a prospect list of 5 people for your Corporate Chair, Medical Honoree and adult/youth honoree each. Discuss these lists at your weekly district meetings if you come up short. Schedule meeting with your ED to discuss prospects and add additional if needed. Reach out to all of your prospects before the end of the year to schedule a meeting to make the ask. Invite your ED to attend this meeting with you.

Please type them into the chat box Questions Please type them into the chat box

Monday, December 3 hear how you’ll activate your Volunteer Committee Thank You