Listening, Learning & Planning Event ASD Listening, Learning & Planning Event 26th March 2018

Agenda 10.00 Welcome & housekeeping 10.05 Overall Purpose: Listening, Learning & Improving 10.10 Recap (First event) – Key themes 10.25 You Said – We Did 10.35 Table Top Activity (1) - Top 10 tips for Parents - Top 10 tips for Professionals/Agencies 11.00 Break 11.15 Strategy: Our plan for action/How we will achieve our goals 11.20 Table Top Activity (2) - Vision/Priorities/Why/What we need to do 12.00 Feedback/Summary 12.15 Plenary & Next Step 12.30 Close

Review & Recap Key Themes: Information: Communication: Consistency Listen to parents/Consult Be positive! Information: Gaps Accessibility/ Easy to find/Clarity Pre-diagnosis Services for under 5s Parenting advice & support Support/Provision: Gaps Needs to be joined up Who does what? Continuum of need Graduated Response STRATEGY

- YOU SAID - Improve Information “LO needs a dedicated section on ND & individual sections on ASD/ADHD” “When a parent knows that something is not right everyone needs to know what is accessible. ” “Who updates the Local Offer?” “Information needs to be available via the One Stop Shops.” “LO Needs to be advertised more to parents & professionals.” - YOU SAID - Improve Information “There needs to be contact information on relevant agencies & who does what.” “There needs to be more information for parents pre-diagnosis.” “There needs to be clearer information about the assessment, the purpose & the process. ” “There needs to be a flowchart of the process for diagnosis.” “There needs to be more information on parenting advice.”

- YOU SAID – Improve communication “ CONSULT with parents and ask them what support they need ” “ Be clear.” “LISTEN to Parents” “SPEAK to parents.” - YOU SAID – Improve communication “Be consistent – agencies need to say the same thing.” “ Tell parents how to access information and who is there to support them.” “Improve COMMUNICATION to support parents at the beginning of the journey. ” “Promote the message that things will get better.” “You should not need a diagnosis in order to access help.”

- YOU SAID – Improve Provision “Look at what is most effective” “Look at a continuum of need - what support is needed when” “Look at what is most effective” “Identify the gaps and address them.” “Provide support at the beginning of the journey, not just midway through or at the end.” “Look at what we need to do together to improve services.” - YOU SAID – Improve Provision “Join up ‘the offer’ and develop a graduated response.” “Build on the existing strength & expertise.” “Provide a consistent offer.” “Develop the early help offer for parents – pre-diagnosis.” “Provide more support for parents pre-diagnosis”

- Some of the things we’ve done so far- Reviewed & revised information on the Local Offer – to make it clearer. (Quick feedback form for users) Ensured there are hyperlinks to other information sources Revised ‘7 minute’ multi-agency briefings (LO) Tweeted the Local Offer/Facebook page/Alder Hey Live Feed Met with the lead for One Stop Shops. Staff briefings Developing a comprehensive package of information for parents. Creating a professional portal to upload information for school & others. Reviewing the information on ASD Pathway to make sure the purpose of the assessment is more explicit. Liaised with local children centres/Early Years Consortia – offer for under 5s – to ensure it is more explicit Developing parenting courses for parents whose children don’t have a diagnosis – Promoted through children centres.

TABLE TOP EXERCISE 1 Purpose- To develop an ‘at a glance’ 10 top tips on how to ensure professionals & agencies communicate clearly to parents. What should professionals and agencies do? To develop 10 top tips for parents – to support parents in obtaining the right information at the right time. What should they do?

TABLE TOP EXERCISE 2 Purpose – Outline your VISION for children & families? (What should be the overall ambition/goal of an ASD Strategy) What do you want the strategy to achieve? (Maximum of 5 sentences). Outline 6 priorities? (Areas we need to focus upon that will have the greatest impact) Under each priority - list ‘what we need to do.’

Next Steps…