Patient Affairs Committee Fall 2014

New Committee Initiatives Revising policy 3.6.C – clarifying how waiting time is transferred in common situations Current policy does not provide operational details Spring 2015 Public Comment The Committee is reviewing and revising current policy around transfer of primary waiting time. There are common situations that aren’t addressed in the current policy. For example, the current policy language does not address how primary waiting time is transferred when a patient chooses to not have multiple registrations but there is a gap of time in between the patient being removed at the earlier hospital and then registered at a new hospital. The Committee is drafting language to make it clear how transfer of primary waiting time is handled in this and other cases in order to provide clarity to transplant programs and patients.

New Committee Initiatives Update of the 2010 ‘What Every Patient Needs to Know’ brochure Incorporate policy changes and additions Include information about new areas under OPTN VCA KPD The Committee last updated the ‘What Every Patient Needs to Know’ resource in 2010. There have been many significant changes in transplantation since that time, including the addition of KPD and VCA transplants under the OPTN. There have also been significant updates to Living Donor evaluation and follow up. Over the next year, the Committee will be working to update the resource.

Questions? Patient Affairs Chair Kristie Lemmon, MBA Kristie.lemmon@gmail.com UNOS Staff Liaison Freda Wilkins Freda.wilkins@unos.org