2017 National Cancer Patient Experience Survey Overview of NBT Results Published September 2018 Carol Chapman Lead Cancer Nurse Patient Experience Group

Background Annual survey - commenced in 2010 Aim to monitor national progress on cancer care and inform service improvements 110,449 eligible patients identified nationally with 69,072 competed responses (response rate of 63%) Included all adult patients admitted as an inpatient or outpatient between April to June 2017 with a cancer related condition The survey report is published 15 months since the episode of admission. The number identified as eligible is up from the 2016 due to a review of the validation process. Last year only patients recently diagnosed were included due to error. This is recified this year resulting in the increase in eligible numbers

Reporting methodology The CQC standard for reporting comparative performance is applied, based on calculation of “expected ranges” Trusts/CCGs are flagged as outliers only if there is statistical evidence that their scores deviate (positively or negatively) from the range of scores that would be expected for Trusts/CCGs of the same size Site specific results were reported only for Breast, Colorectal, Prostate, Haematological, Skin and Urological cancers The results of tumour groups with less than 20 respondents were not reported to protect confidentiality and because uncertainty around results is too great Brain/CNS number of respondents was 10 at NBT

SWAG Overview Trust Numbers of respondents Response rate National Average Tumour groups with results reported Scores above expected range Scores below expected range NBT 605 68% 63% Breast/Colorectal Haematology/Prostate Skin/Urology/Other 3 1 UHBristol 694 Breast/Colorectal/ Gynaecology/ Haematology/ Head and Neck/Lung /Prostate/UGI/ Other 8 Gloucester 1,273 66% Head and Neck/Lung /Prostate/UGI/urology/Other 10 RUH 521 70% Urology/Other Taunton 552 69 18 Weston 173 67 Breast//Haematology/Urology 6 Yeovil  

SWAG Cancer dashboard results Question NBT Glos UHBristol RUH Taunton Weston Yeovil National Average Rate of care of 10 8.7 8.8 8.9 9.0 Definitely involved as much as they wanted to be in decisions about their care and treatment 77% 76% 78% 82% 84% 79% Given name of clinical nurse specialist who would support through treatment 94% 88% 93% 91% That it had been ‘quite easy’ or ‘very easy’ to contact their Clinical Nurse Specialist 83% 87% 90% 86% Overall, they were always treated with dignity and respect while they were in hospital 89% 92% Hospital staff told them who to contact if they were worried about their condition or treatment after they left hospital 96% 95%

NBT Brain/CNS – Patients comments   Was there anything particularly good about your NHS cancer care? My experience in Southmead was excellent. Once diagnosed, extremely quick treatment and care given by Bristol hospitals. Oncology nurses outstanding. Was there anything that could have been improved? Support for family at home. Contact from GP surgery. Information about financial entitlements. Delivering the first diagnosis was poor, insensitive and unprofessional by Dr Giffin, neurologist at RUH Bath. Wonderful. Southmead Hospital - superb facility. Felt very production line like, quickly transferred to Bath Royal University Hospital, felt cast aside in some ways. Transition between two very abrupt and was not always clear around transition/transfer of information. Very patchy physio support in both hospitals which was a huge effect on my morale. Support for certain forms of cancer (e.g. brain tumours). Only in certain areas and support groups 60 plus mile round trips away, when you no longer drive, are of little use. The staff at the radiotherapy department at the BRI were outstanding. The nurses always had a smile and were friendly and caring and compassionate. Nothing was too much trouble for them. Overall I am more than satisfied with the care I have and still receiving. Yes, the ambulance transport could be improved with picking and dropping off. Several times I was late for appointment due to transport being late or not turning up at all. Also my local GP has not contacted me since my diagnosis. Any other comments? NHS staff are overworked, understaffed and underpaid. They are worth their weight in gold. The people in hospital, my doctors, district nurses and St Peters Hospital Staff all listened to me and allowed me some input into my care and drug regime. They have all been sensitive and caring. My stay in Southmead intensive care was very noisy (alarms going off all night) so no sleep. I was only there for 5 days before being discharged. I have been very impressed with the level of care I have received at a very difficult time. Everyone has been kind, sensitive and caring. Not really, thank you all.