National Collaborative on Childhood Obesity Research Todd Phillips, MS Project Director NCCOR Coordinating Center FHI 360 Robin A. McKinnon, PhD, MPA Health Policy Specialist National Cancer Institute David Berrigan, PhD Biologist, Program Director Applied Research Program National Cancer Institute July 31, 2014

Agenda Overview Tools Questions More Information NCCOR mission and goals What does NCCOR do? How can NCCOR support your work? Tools NCCOR Catalogue of Surveillance Systems NCCOR Measures Registry Questions More Information

NCCOR Mission To improve the efficiency, effectiveness, and application of childhood obesity research to accelerate progress in reducing childhood obesity. 

To accomplish its mission, NCCOR’s projects and activities align with one or more of its five goal areas.

What Does NCCOR Do? Determines research priorities and furthers research in emerging areas Facilitates time-sensitive research by promoting new research funding mechanisms Translates and disseminates findings and resources Supports researchers with tools and resources Connects research and practice communities through interactive webinars

How Can NCCOR Support Your Work?

Communicates with Key Audiences Connect to NCCOR to get the latest childhood obesity events, news, and research. NCCOR website: www.nccor.org Sign up for the NCCOR e-Newsletter Join the conversation: Twitter @NCCOR LinkedIn Blog

Hosts Webinars to Connect Research, Practice NCCOR connects research and practice communities through webinars, such as our Connect & Explore Webinar Series. Connect to leaders in the field. Learn more about recent childhood obesity research. Explore the priorities of national funders.

Determines Research Priorities NCCOR projects and activities support emerging fields and further their impact on childhood obesity. Green Health Healthy Food Incentives Envision

Facilitates Time-Sensitive Research NCCOR promotes new funding opportunities, including rapid response mechanisms that help investigators study policy and environmental changes in real time. Johns Hopkins Global Obesity Prevention Center NIH Fast Track R01 Mechanism

Translates and Disseminates Findings Access NCCOR reports, infographics, videos, and other resources to see how we translate complex research into creative and engaging visual and written materials. Healthy Diet and Healthy Eating Index Infographics Series Public Health and Green Building Infographic Food Patterns Equivalents Database Fact Sheet

Supports Researchers with Tools, Resources Search the Catalogue of Surveillance Systems and the Measures Registry to review, sort, and compare surveillance systems and measures relevant to childhood obesity research. These free, online resources aim to provide standardization and comparability of measures and systems for the field. The tools received nearly 500,000 visits in 2013 and really embody what NCCOR is all about – supporting scientists and other users with tools that help them work more efficiently and effectively. You’re going to hear a lot more about the tools and how they can support clinical work right now.

Catalogue of surveillance systems Robin A. McKinnon, PhD, MPA | Health Policy Specialist | National Cancer Institute Catalogue of surveillance systems

NCCOR Priority The Catalogue was one of NCCOR’s early projects, related to two of its goal areas. Goal 2: Increase and improve national, state, and local surveillance of childhood obesity. Goal 3: Improve the ability of childhood obesity researchers and program evaluators to conduct research and program evaluation. [OTHER THINKING BEHIND CREATION OF CATALOGUE (COULD BE ITS OWN SLIDE)] --Interest in childhood obesity determinants grew from the individual level to social, environmental, and policy --Childhood obesity research has traditionally focused on individual-level factors --Less is known about organizational, community, and macro-level determinants of childhood obesity --Awareness of surveillance system resources was limited and, therefore, few had taken advantage of available systems --Relatively little research had incorporated data linkages across the ecological spectrum

Catalogue Background Heightened interest in social, environmental, and policy determinants of childhood obesity Issues facing researchers & practitioners What data resources exist? What are the costs? How do I access the data? What variables can I link across systems? Where can I find more details? Catalogue Obesity-Related Data Resources Researchers & Practitioners

Catalogue Background Launched in February 2011 Free resource to help researchers, practitioners investigate childhood obesity in America Purpose: Increase efficiency, effectiveness, innovation in obesity research through an online, searchable directory of surveillance systems One-stop access to review, sort, compare over 100 surveillance systems relevant to childhood obesity research and the evaluation of policy and environmental interventions

Other Details Systems in the Catalogue: Using the Catalogue, one can: Provide access to publicly available “raw” data gathered in the United States Were collected within the last 10 years Using the Catalogue, one can: Identify data resources related to childhood obesity Compare attributes across systems Link to other resources of interest

Filter Options for Searching Catalogue You can also search by keyword NA&AN = Native Americans and Alaskan Natives

System Profiles Each system in the Catalogue has a profile providing information organized by: At a Glance Sampling Key Variables Data Access & Cost Geocode/Linkage Selected Publications Resources

Ex: National Hospital Discharge Survey

Ex: National Hospital Discharge Survey

Highlights of Systems w/ Clinical Interest Behavioral Risk Factor Surveillance System Health Behaviors in School Aged Children Health Resources and Services Administration Geospatial Data Warehouse Medical Expenditure Panel Survey-Household Component  National Ambulatory Medical Care Survey National Health Interview Survey National Hospital Ambulatory Medical Care Survey National Survey of Ambulatory Surgery North Carolina Child Health Assessment and Monitoring Program Pregnancy Nutrition Surveillance System Maternity Practices in Infant Nutrition and Care Survey [I HIGHLIGHTED TWO OF THESE GREEN BECAUSE THOSE AND THE NAT. HOSPITAL DISCHARGE SURVEY ARE COMPARED ON THE NEXT SLIDE]

Compare Attributes Across Systems

More Information tools.nccor.org/css www.nccor.org/css Fact sheet, case study available Demonstration video: www.youtube.com/watch?v=eqQ2rMwJgCE

David Berrigan, PhD | Biologist, Program Director | National Cancer Institute Measures registry

What Are Measures? Measures are tools and methodologies used to assess individuals' diet, physical activity, and the environments in which these behaviors occur. Examples of measures include questionnaires, instruments, diaries, logs, electronic devices, direct observations of people or environments, protocols, and analytic techniques.

NCCOR Priority The Measures Registry was also one of NCCOR’s early projects, related to two of its goal areas. Goal 1: Identify, design, and evaluate practical and sustainable interventions, especially in high-risk populations and communities. Goal 3: Improve the ability of childhood obesity researchers and program evaluators to conduct research and program evaluation. [OTHER THINKING BEHIND CREATION OF MEASURES REGISTRY (THESE COULD BECOME A SLIDE)] --A key priority for NCCOR is promoting the use of common measures and methods across childhood obesity prevention and research. --Standard measures are needed to describe and evaluate interventions to prevent childhood obesity, particularly those projects that address policies and environments. --We thought a Measures Registry would facilitate identification of existing measures, identify gaps, and fuel new measurement development.

Measures Registry Goals A key priority for NCCOR is promoting the use of common measures and methods across childhood obesity prevention and research. Standard measures are needed to describe and evaluate interventions to prevent childhood obesity, particularly those projects that address policies and environments. We thought a Measures Registry would facilitate identification of existing measures, identify gaps, and fuel new measurement development.

Gap Identification IOM 2013 Report: “Evaluating Obesity Prevention Efforts: A Plan for Measuring Progress” http://www.iom.edu/Reports/2013/Evaluating-Obesity-Prevention-Efforts-A-Plan-for-Measuring-Progress.aspx Highlighted the fact that the Measures Registry is the only existing resource developed with a focus on measuring diet and physical activity and related environments programs and systems in youth Used Measures Registry to identify specific gaps and next steps

Issues Facing Researchers, Practitioners Where can I find a specific measure? What measures have been validated? How has a specific measure been validated? What are the costs? Where can I find more details?

Measures Registry Background Launched in 2011 Free searchable database of diet and physical activity measures relevant to childhood obesity research Purpose: Standardize the use of common measures, research methods across childhood obesity research at the individual, community, and population levels. Allows users to search or browse over 1,050 measures, access details for each measures, link to other measures registries and related resources, find measures in development, and submit new measures for inclusion [OTHER DEVELOPMENT BACKGROUND] --Conducted literature searches, including articles published from 2004-2010 --Examined an extensive best-practice review completed by Transtria --Contact subject matter experts to supplement lists of measures --Collected data for each measure entry using a tailored abstraction tool, including details like protocols on use and settings, geographic areas and populations for which the measure has been used

Other Details Categorized literature and measures into four domains Individual dietary behavior Individual physical activity behavior Food environment Physical activity environment Both the Measures Registry and Catalogue underwent extensive formative research and usability testing.

Filter Options for Searching Measures Registry You can also search by keyword

Measures Registry Dashboard

Measure Profiles Each measure in the Measures Registry has information organized by: Abstract At a Glance Study Design How to Use Validity Reliability

Measures Registry: At a Glance

Clinical Relevance Few measures re: chronic diseases, children Actiheart for Children with Chronic Disease ActivPAL Physical Activity Monitor for Wheelchair Movement Some other relevant measures Nutritional Environment Measures Survey for Cafeterias for Children's Hospitals Hospital Nutrition and Physical Activity Environment Food Frequency Questionnaire to Assess Peanut Consumption School Wellness Policies for Post-Partum Adolescents RT3 Accelerometer for Adolescents Tool serves as place to look for measures and gaps in measures (identifying research and clinical needs) [ANOTHER ITEM TO POINT OUT] --The Measures Registry might help clinicians think about how easy/hard it is for patients to respond to advice to change behaviors – you may advise a child or family to be more active and to eat better, but this may or may not be simple given the neighborhood they live, as well as time and/or economic poverty.

Positive Feedback

2014 Tool Updates Both tools undergo regular updates, adding more surveillance systems and measures Other updates in 2014: Redesigned NCCOR website homepage and navigation tabs, making it easier to locate these NCCOR tools Project pages updated to make accessing the tools and relevant resources more straightforward Tools were revised to make finding data easier

Other 2014 Plans Being Considered Measures Registry Develop domain-specific user guides Catalog measures by construct Catalogue of Surveillance Systems New system profiles Additional key variables under consideration: sleep; urbanicity/rurality Currently we are

More Information tools.nccor.org/measures www.nccor.org/measures Fact sheet, case study available Demonstration video: www.youtube.com/watch?v=mJZTDaewNug

Questions?

For More Information about NCCOR Learn more about the Collaborative, www.nccor.org Contact Todd Phillips, Project Director, tphillips@fhi360.org