Discovery Interviews Skills Building Day One Morning Session Learning from patient and carer experiences Facilitated by: Ian Govier Jane Price Personal, professional & organizational Discovery Interview & PPI/E development to meet your needs Lead

Introduction Undertaking interviews or story collecting with patients and carers requires innate ability, acquired skills and plenty of practice. It’s arguable that a two day session covering rationale, background and practical issues is far from sufficient for healthcare professionals who are more used to history taking and gathering the necessary information to inform their input in the patient’s treatment, care and support. The Network project was only able to secure two study days and these days were intensive. Ian Govier from CRT with his experience on the RCN Leadership programme was an important and valued contributor to these sessions. Slides with the CRT symbol are used with Ian’s kind permission. YOU ARE WELCOME TO USE OR ADAPT THESE SLIDES IF YOU INTEND UNDERTAKING SKILLS BUILDING SESSSIONS YOURSELF, IF YOU REQUIRE SPEAKER NOTES PLEASE CONTACT ME. PLEASE ATTRIBUTE ANY TEACHING MATERIAL USED TO ITS AUTHOR.

Day One Programme Background to Discovery Interviews Whose involved in the SEWCN Project Listening to patients experiences, a practical demonstration Setting up the process from scratch Benefits of Discovery Interviews

We have made significant progress in recent years, but we all know that we need to do more. We all need to work better together and improve our services more quickly. This change process will need close engagement with patients, service users, staff and the wider general public to achieve the transformation that is required.

“Asking patients what they think about the care and treatment they have received is an important step towards improving care for patients in hospitals and other health services.” Professor Sir Ian Kennedy, Chair, Healthcare Commission, 2004

Listening to Patients A common criticism of the NHS is that it sometimes fails to reflect or respond to the views and experience of patients and public when planning and delivering NHS services. The importance of the patient’s voice is recognised as being centrally important in the drive for service improvement.

Discovery Interview Partners Cardiff and Vale NHS Trust Ymddiriedolaeth GIG Caerdydd a’r Fro

Being a patient : Ian’s Story Listen to Ian talking to Jane about his experiences. After you hear it go for coffee & check your group allocation for the next session

Small Group Work Raffle (if your name comes out you are it! – scribe or feedback person) Discuss : What did you notice about the story? What did you notice about the interview?

“When we want your opinion we’ll ask you for it” Quality improves as we improve the match between our services and the needs of the people who depend on them.

Discovery Interviews Setting up the process Note 1: Daniel, L. (14 June 1999). Intelligent managers in tune with workplace stresses. Federal Times. 16. Setting up the process

Before you can begin… Trust commitment Ethical approval Identifying participants Making contact Setting up the process is, as I am discovering is time consuming there are a number of factors to consider & whilst it is my top priority, it has to be woven into the pattern of very busy Cardiac Directorates everyday life. 1. In order to suceed it is essential Trust commitment at board level is secured. The project has to demonstrate that it has been worthwhile & that real changes result from the work carried out. 2. Whilst the project is definitely not a piece of research, rather a qualatative study of patient experiences it has gone through robust ethical scrutiny both at SE Wales Research Ethics committee & in house Trust ethics committees. This is necessary to protect the participants of the project. 3.The aim of the South East cardiac network is to encourage each Trust to listen to patients who “fit” the five NSF pathways. My aim is to produce information and outcomes which will be used to revisit these pathways & incorporate a patient centred approach to what are currently process & medicalised pathways. Potential participants are invited to help with the project & are randomly chosen from patients who have had treatment & care no longer than one year and no less than six months ago. Cardiac Directorate staff are selected to act as Discovery Interviews & after skills building days go out to interview patients with support from the Priniciple Discovery interviewer & myself. 4. Interview recorded, transcribed & anonymised

Step One Lead Clinician & Principle Investigator identify potential participants Potential patients/carers invited to participate Principle Investigator links patient & Discovery Interviewer Interview recorded Interview transcribed & anonymised

What are the benefits of undertaking Discovery Interviews?

Method – Step Two Report collated Steering Group called Report reviewed/areas for action identified

Method – Step Three Identified leads disseminate for discussion Recommendations Action Plan Service improvements Evaluation & outcome Report back to Discovery Interview Facilitator

Lunch Time