Yorkshire & Humber Muscle Group Let’s finish what we started Yorkshire & Humber Muscle Group Robert Meadowcroft 22 June 2018
The journey so far… Impact of Muscular Dystrophy UK Progress from 2006 to 2018 Challenges today? Opportunities in front of us
Income from charitable activities Donations, gifts & grants Legacies Where are we today? INCOME 2017/18 £000 Income from charitable activities Donations, gifts & grants Legacies 5,039 1,564 Income from other trading activities 88 Investment income 248 Other income 220 Total income 7,159 EXPENDITURE 2017/18 £000 Expenditure on raising funds 2,147 Costs from other Trading Activities 85 Sub total expenditure 2,232
CHARITABLE ACTIVITIES 2017/18 £000 Driving research and support CHARITABLE ACTIVITIES 2017/18 £000 Medical research 3,775 Access to specialist care and support 1,184 Quality of life – independent living 1,106 Total charitable activities 6,065 EXPENDITURE 2017/18 £000 Sub total expenditure 2,232 Total charitable activities 6,065 Planned deficit for year (1,191) Total expenditure 7,106
Strategic investments
Improving NHS Care
Our impact with first new treatments IVF mitochondrial donation Translarna for eligible Duchenne boys Spinraza for SMA Type 1
Priorities for 2019/2022 Research to accelerate the steps to treatments and cures Improved care and support Quality of life for independent living
Four strategic themes… 1. Fast track to treatments 2. Mental health matters 3. Use of technology 4. Sport, leisure and exercise
Key strengths Strong, committed and determined staff team New CEO and Dr Kate Adcock, Director of Research, strengthening leadership team Strong governance and very effective Trustees and committees Networks - research, senior NHS staff, policy fields & in sport, biotech/pharma and business
The first and best choice for families Accelerate progress The first and best choice for families Seen to lead the way in research, clinical trials, improving NHS care and support Engage volunteers through stronger regional networks with digital support Effective communications including redeveloped website and social media