Transitioning Pediatric Transplant Patients to Adult Care Stacy Boyce, MSW

Pediatric Care Vs. Adult Care Pediatric Care child/family centered parental involvement/ensure compliance multidisciplinary Adult Care patient centered autonomy/independence physician directed (referrals to other specialists)

Transition Planning Process Transition Planning Process Transition planning begins at age 14 but can occur sooner Transition planning begins at age 14 but can occur sooner All team members play an important role All team members play an important role Checklists Checklists Benefits Benefits Patient becomes more knowledgeable about medical condition and learns new skills Patient becomes more knowledgeable about medical condition and learns new skills Patient becomes more independent, confident, and self-sufficient Patient becomes more independent, confident, and self-sufficient Adult providers have expertise in caring for adults Adult providers have expertise in caring for adults

Knowledge of Medical Condition Describe Chronic Illness Describe Chronic Illness Implications of Illness Implications of Illness CKD Surveys CKD Surveys Where to obtain more information Where to obtain more information Medical Team Medical Team Internet Internet Transplant Facebook Page Transplant Facebook Page

Managing Health Care Needs Symptom management Symptom management Daily care Daily care Learning names and dosages of medications Learning names and dosages of medications Medication refills Medication refills Scheduling own medical appointments Scheduling own medical appointments Meeting with health care providers independently Meeting with health care providers independently Identifying adult providers (PMD) Identifying adult providers (PMD)

Knowledge of Health Insurance Learning about insurance benefits and length of coverage Learning about insurance benefits and length of coverage Making calls with parent when there is a question or concern Making calls with parent when there is a question or concern Applying for other insurance programs (WCRDP) Applying for other insurance programs (WCRDP) Re-applying for Social Security benefits Re-applying for Social Security benefits Carrying insurance card(s) Carrying insurance card(s)

Educational/Vocational Needs College College Living Situation (dorm life) Living Situation (dorm life) Peer pressure (sex, drugs, rock & roll) Peer pressure (sex, drugs, rock & roll) Student Health Centers Student Health Centers Pharmacy Pharmacy Emergency Care/Providers Emergency Care/Providers Work/DVR Work/DVR Schedules Schedules Medical Documentation (letters) Medical Documentation (letters)

Advance Care Planning Advance Medical Directives Advance Medical Directives Discuss with patients age 18 and who are decisional Discuss with patients age 18 and who are decisional Purpose, importance, and benefits Purpose, importance, and benefits Provide copies to FMLH and other providers Provide copies to FMLH and other providers Legal Guardianship Legal Guardianship Pursue for patients age 18 and who are non-decisional Pursue for patients age 18 and who are non-decisional Provide legal documents to FMLH and other providers Provide legal documents to FMLH and other providers Resources Resources

Questions?

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